More than normal

[MaeDae]

Lately I've been having more episodes of "Unplugged". I call it that, because that's how I feel. One moment I am absolutely fine and the next, it feels like my body is drooping, dragging and sagging. It scares me and causes my heart to race. To be more exact, it feels like Im being pulled through a hole. Breathing becomes a little labored and limbs feel like jello. I've been getting this jerky feeling (new) kind of like spastic, I just want thrash limbs and scream. I have provoked these episodes accidently by scratching the right side of my head (I know crazy). When I scratch the right side of my head, it sends me into a frenzy. It's the area where I had surgery. Very sensitive, but still don't have all of the feeling back (almost 2 yrs now). I also noticed they happen a few hours after I get the little lights which now pop up into my vision and don't move and they use to zip back and forth. Been having a lot of autisms? like, patting hands, rubbing my face. Anyone now if this is seizure activity? if so what type. And my mind is driving me crazy....lots and lots of day dreaming, and words, words, are repeating in my mind words and numbers. Crazy, Crazy,

 

[MaeDae]

Like scrabble (the game) instead of tiles, it's words, flashback of memories of things I remember and don't remember? Almost like preminitions Im feeling like a ticking time bomb!
KABOOM! My head is going to enplode on me.

 

[Nakamova]

Can stop the automatic behaviors (patting hands, face rubbing, etc.) when they occur? If so, then they are less likely to be seizure-related. If you can't stop them or control them, then you may be experiencing simple and complex partial seizures.

The lights in your vision are associated with both migraine and with simple partial seizures. The other symptoms you describe (muscle spasms, mental confusion) may be seizure-related as well. It would be a good idea to check in with your neurologist to have these new symptoms evaluated.

 

[MaeDae]

yes, i can control hands etc, but the urge is so strong, it takes a few seconds, but i stop, perhaps i should of said, unable to stop fidgeting? but im unaware that im doing it, until somse says something to me or i realize it. hmmmm, perhaps nerves? will mention to dr next mo when i go, but i get so tired of him blowing me off, He's just gong to tell me to see eye dr again, and the eye dr will tell me to go see neuro. : ( i kknow i sholuld find anohther one, but im tired, some times Nakamova I wish I would just have the tonic-clonc seizure in front of a dr or other med professional, so I can say "See, I told you something was wrong with me". That's the worst thing i could say, not knowing whatt i asking for and not keeping in mind how everyone here feels , espcially if they have tonic-clonic seizures, forgive nme, im not insensative, im just tired and scared, that my "I told you so", may be my last.
thanks Nakamova, thank you for everything.

 

[Nakamova]

I remember that the whole year before I had my first tonic-clonic, my left side would get tense -- I could stop it, but I couldn't prevent it from happening again. Similar to the automatic behavior you're experiencing. I do think there's something neurological going on, and I hope you can get a doctor to listen.

 

[RunningGirl85]

Like scrabble (the game) instead of tiles, it's words, flashback of memories of things I remember and don't remember? Almost like preminitions Im feeling like a ticking time bomb!
KABOOM! My head is going to enplode on me.

This is exactly how I feel when I'm having some of my simple partial seizures, or before a tonic-clonic seizure. The memories and then the increased heart rate/feeling of fear almost. It's weird and annoying because sometimes it's hard to know the difference between what has really happened or if I'm just having a seizure. Usually I just get a short deja vu feeling and it goes away, but this feeling generally leads to longer simple partials (and twice led to full on seizures).