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Dawn:
I am sorry to hear of the loss of your brother,
please accept my sympathies. I too have had
Tonic Clonic seizures (aka Grand Mal) and had
close brushes with S U D E P which is known
as SUDEP.
I have no memory or recollection of any of the
events, nor do I feel any pain but only after the
seizure is over with if I had injured myself in
some manner.
One thing I know it causes heaviness upon my
family when such events like this occurs when
danger arises, especially when it's being Status
or becoming a S U D E P issue.
For my own family trembled in total
helplessness, fortunately, I made it through.
I live one day at a time and my family is
fully aware of the entire being. It angers and
saddens them at the same time, even with my
ex-husband whom we still have close rapport,
it still bothers him. I am intractable, and there
is nothing that the Medical Doctors can do
about it except give me medications; which
they do control it, for if they take me off of
it, I seize all the time so the medications DO
work, but it is not a cure. That is all they can
do for me, and yet all of us loathe seizures
(epilepsy) with a passion.
I am sorry to hear of the loss of your brother,
please accept my sympathies. I too have had
Tonic Clonic seizures (aka Grand Mal) and had
close brushes with S U D E P which is known
as SUDEP.
I have no memory or recollection of any of the
events, nor do I feel any pain but only after the
seizure is over with if I had injured myself in
some manner.
One thing I know it causes heaviness upon my
family when such events like this occurs when
danger arises, especially when it's being Status
or becoming a S U D E P issue.
For my own family trembled in total
helplessness, fortunately, I made it through.
I live one day at a time and my family is
fully aware of the entire being. It angers and
saddens them at the same time, even with my
ex-husband whom we still have close rapport,
it still bothers him. I am intractable, and there
is nothing that the Medical Doctors can do
about it except give me medications; which
they do control it, for if they take me off of
it, I seize all the time so the medications DO
work, but it is not a cure. That is all they can
do for me, and yet all of us loathe seizures
(epilepsy) with a passion.