My Epilepsy

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Ciotog

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Hello Everybody,

I prefer to describe my Epilepsy as a condition. Outside of the many Grand Mal seizures I have had to endure, my life apart from having to take numerous medicines, has been relatively normal and calm. As far as medication is concerned, I take Lamictal and Epilim. I am fortunate to have a consultant who specialises in Epilepsy and who gives me ample time when I visit him. The many other Neurologists hardly gave me the time of day.
Some years ago I pleaded with my Neurologist to reduce the Epilim dosage, in order to counteract the excessive shaking when carrying items such as coffee mugs. This proved to be a devastating decision to take. In March of last year, on the eve of our national holiday Patrick's day, I suffered 3 Grand Mal seizures. I was hospitalised for a week. It was a great disappointment for me, as it was 10 years since the last seizure. As a result I have not been able to drive since. However, the year has finally come to end and I will be on the road once more.
I realise I was fortunate to have had medical help when I needed it so badly. One thing that happened to me in hospital was that I suffered bouts of Paranoia. I became very confused, such as imagining people speaking about me and the nurses setting up a special unit to monitor me. I even tried to escape from the hospital but security thankfully intervened. Can anyone identify with this particular condition?

Thank you all for taking the time to read my letter.

Ciotog
 
Welcome to CWE. Yo will find that you are not alone in anything you have been through on this site. I deal with the excessive shaking daily and it can really interfere with life. It can make cooking an adventure and just yesterday my work had an activity putting kids reading books together and I just couldn't do it. I thought about cutting down meds like you did but figured I can just tolerate all the hassle.
 
Hi Ciotog, welcome!

My situation is a bit like yours -- I have grand mal seizures, but have been able to control them for a while now with medication (Lamictal). I'd like to reduce the dose, but I'm fearful of having a breakthrough seizure like yours. I hope you stay seizure-free from here on out -- did your neurologist suggest that you might a try a med other than the Epilim so that you don't have to endure the tremors?

The paranoia you describe sounds like post-ictal psychosis. Not everyone gets it, but after a rapid run of bad seizures and hospitalization, you can understand why the brain would be especially confused. It's more likely to occur if your seizures originated in the temporal lobe -- near areas responsible for memory and anxiety and heightened emotion. Were you put different doses of medication while in the hospital? That can also increase the confusion.

These threads from the CWE archives might be of interest:
http://www.coping-with-epilepsy.com/forums/f27/psychosis-5782/
http://www.coping-with-epilepsy.com...anyone-else-has-experienced-type-thing-14273/
http://www.coping-with-epilepsy.com/forums/f20/paranoid-episode-19601/
http://www.coping-with-epilepsy.com/forums/f23/paranoia-epilepsy-7660/
http://www.coping-with-epilepsy.com/forums/f20/post-ictal-psychosis-7106/

Best,
Nakamova
 
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