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I discovered several days ago that the medication I use at the onset of seizure, Klonopin Wafers 1mg, manufactured by Hoffman-Roche, has been recalled due to a problem with their 2mg dose. This tablet has truly been a lifeline for me.
After hearing this news from my pharmacist, I phoned my doctor. I was given several options: call the manufacturer in NJ, consider a compounding pharmacy who might be able to duplicate the wafer or try another medication.
Hoffman-Roche was absolutely no help when I asked questions. Their "nurse" was quite rude, saying they issued a notice 2 weeks earlier. She could not understand the gravity of my situation. I told her I had just found out when I tried to renew my monthly prescription. I asked to speak to a supervisor but was told she was away from her desk. I left my number but she never called me back. I phoned a second time and was greeted by a very sincere employee who was able to connect me with someone in the higher echelons of the company. I am awaiting more information this week to see if this is a permanent recall.
I cannot take the generic version of clonazepam wafers as they make my heart race The compounding pharmacy could not help me with a substitute. Their version was too slow acting. My doctor tried to find a comparable medication but in the end prescribed an oral Klonopin tablet, which he said I should chew in the event I felt a seizure coming on. This is not a feasible option for me. To add to my problems, my insurance company would not pay for it once it was prescribed. Guess I will spend some more time on the phone tomorrow on that one.
Can anyone suggest another orally disintegrating medication such a Klonopin? Is there something else that you have had success with pre-seizure?
I have been "essentially" seizure free for the last 14 months and have been
able to prevent episodes using this wafer. I spent all day Friday doing research and on the phone without any satisfaction.
I only have 12 wafers left and I am beginning to panic. I would appreciate any insights. I have hit a wall trying to be pro-active for my own health.
After hearing this news from my pharmacist, I phoned my doctor. I was given several options: call the manufacturer in NJ, consider a compounding pharmacy who might be able to duplicate the wafer or try another medication.
Hoffman-Roche was absolutely no help when I asked questions. Their "nurse" was quite rude, saying they issued a notice 2 weeks earlier. She could not understand the gravity of my situation. I told her I had just found out when I tried to renew my monthly prescription. I asked to speak to a supervisor but was told she was away from her desk. I left my number but she never called me back. I phoned a second time and was greeted by a very sincere employee who was able to connect me with someone in the higher echelons of the company. I am awaiting more information this week to see if this is a permanent recall.
I cannot take the generic version of clonazepam wafers as they make my heart race The compounding pharmacy could not help me with a substitute. Their version was too slow acting. My doctor tried to find a comparable medication but in the end prescribed an oral Klonopin tablet, which he said I should chew in the event I felt a seizure coming on. This is not a feasible option for me. To add to my problems, my insurance company would not pay for it once it was prescribed. Guess I will spend some more time on the phone tomorrow on that one.
Can anyone suggest another orally disintegrating medication such a Klonopin? Is there something else that you have had success with pre-seizure?
I have been "essentially" seizure free for the last 14 months and have been
able to prevent episodes using this wafer. I spent all day Friday doing research and on the phone without any satisfaction.
I only have 12 wafers left and I am beginning to panic. I would appreciate any insights. I have hit a wall trying to be pro-active for my own health.