My Son has epilepsy

[momofevan]

hi my name is Denise..and my 2 year old son has recently been diagnosed with idio-pathic epilepsy..he has partial seizures..so far the medication they have chosen for him has not worked..so we are still playing around with the dosages until the doctor decides that the med in fact is failing....i guess i should add that the med they started him on was zonegran....

right now it is just frustrating..and he is 2...he just turned 2 in october..so still a young 2..so he can't exactly tell me what is going on with him....anyone have any advice for me

 

[epileric]

Welcome Denise

Theres' a lot of parents here that are very helpful (just like the ones who aren't parents lol). You might want to check out the Nursery & see what is going on there that might help you out. http://www.coping-with-epilepsy.com/forums/f42/

I was born with my seizures & I know that my visible symptoms were that I'd hyperventilate in a way that sort of sounded like laughing, & my pupils would dilate then shrink back after the seizure (I'm told that's common) as well as get specific facial twitches. I'm sure there were other symptoms but I wasn't aware of them all. What would be best is to be as observant as possible & get to know your childs symptoms best you can.

There are also other things you can try in conjunction with his meds, check out the list http://www.coping-with-epilepsy.com/index.php?p=alternative-treatments There's a few people that have tried various alternative treatments & are very free with sharing their experiences..

 

[momofevan]

thank you so much..that was helpful...

 

[RobinN]

Hi Denise - Welcome again
Does Evan have any other symptoms? GI issues, eczema, rashes, delays ?

 

[momofevan]

Does Evan have any other symptoms? GI issues, eczema, rashes, delays ?

nope....no GI issues..eczema, rashes, or delays....he is developmentally on target for his age....

 

[RobinN]

In a way that most likely would be a good sign.
If it were my son, immediately I would go through the cupboards and eliminate ALL foods that are processed, and have ANY questionable ingredients. I would begin with eating fresh fresh foods. You might consider testing, but I have found that from research many are not 100% reliable and that the best test is to just eliminate the offending foods. Cut back on refined grains and eliminate wheat and cow dairy.

Keep a journal or a calendar of events and side effects that you notice.