Cint, my whole point is that if you are aware from personal experience that certain words are upsetting to people with certain conditions, then you wouldn't want to use words with negative connotations towards someone who happens to have a different condition.
Now you are dismissing other epilepsy sufferers and their loved ones because their experience of epilepsy is less "bad" than yours. I sort of see what you are saying, in that having tonic-clonic seizures has more of an impact on one's life than, say, absence seizures, but surely everyone who uses this forum has valid, if different, reasons for particpating?
Where did I dismiss anyone's experience of SP or CP seizures less than a TC seizure. I do know what they are like also. BEEN there, done that, too, so I would not dismiss them as I DO know even those types of seizures frighten others around when they happen. I feel I have a valid point.
You sort of see what I'm saying. That is the problem.
You have NO idea what it is like to suffer from any type of seizures, SP, CP, or TC, so how in the world can you comment? I do and I've also suffered my share of depression, even been suicidal.......... read on...........
As CQ says further up, watching your child thrash about the floor with her lips turning blue isn't too much fun.
Going back to something like DevonMax's original point, I would swop places with my daughter any day, any day. And yet, epilepsy is a part of her and makes her all the more precious and remarkable for the way she gets on with, and achieves in life, despite thsi burden she has to carry.
Perhaps you can elaborate what you mean by research and why you think that is relevant? I've certainly read a lot about epilepsy (my father had it too) and mental health issues, not to mention having experienced the latter personally and in others, not that I'm entirely sure of the relevance?
I'm the one who has thrashed about the ground/floor, wherever, in front of bunches of people, at ball games, stores, parks, at home when kids were there without another adult and had to call 911, thinking their momma was gonna DIE! So no, with lips turning blue and seeing their mommy taken to the hospital wasn't much fun.
I can elaborate about what I mean by mental illness/epilepsy research and the relevance..... First of all depression and temporal lobe epilepsy do go hand in hand. There is a HUGE relevance between the two. Check out this web:
http://professionals.epilepsy.com/page/psysym_depres.html
After I had my temporal lobectomy, I went thru years of terrible depression, to the point of being suicidal. And not only that, the seizures returned with vengeance, my memory is worse, I suffer from aphasia.... the list goes on. My neuropsychiatrist tried me on numerous anti-depressants, to NO avail. Finally he said I was bipolar and then put me on an anti-psychotic med, that in turn, caused Type 1 diabetes because of it. So now on top of taking two AED's, an anti-depressant, having to do insulin, having had the VNS, and other female problems and STILL suffer seizures AND depression, that is MY point. And to have some
20 year old who suffers from schizophrenia and only a few years of seizures, offer their help, sorry, that is of NO help to someone with my type problems.
Sorry to sound so crass, but it is what it is!
