My suspicions were correct.... Went to the doctor today...

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I just want to give an update about what has been going on.

I went to the doctor today to discuss these recent episodes I had been having. I told him that these episodes have come back and they were worse than ever. In the beginning, I was nervous to even discuss it with him. I worried that he would not take me serious, think I was crazy or tell me I need to see a therapist. I have heard some horror stories about doctors saying some of the most nastiest things to their patients, so the thought of that happened frightened me. However, I mustered up the bravery to tell what was going on. He was non-judgmental and was genuinely concerned.

We sat down and discussed what was going on. I told him that these episodes happened a few years ago and progressively got worse over time. I told him that I had went to another doctor right as these episodes were starting and gave him all the detailed information. He kind of looked at me with a puzzled look like he had no idea as to what I was talking about. He sent me over to a neurologist and had an MRI done. NOTHING. Absolutely nothing. It came back clear as a whistle and I was stuck without any answers. I felt like it was all made up in my head and that point I just tried to do my best by living with them until they mysteriously disappeared.

Fast forward to now, they have come back and they are now worse than ever. He told me that everything that I described to him definitely sounds like simple partial seizures/epilepsy and the largest episode I had years ago was possibly a grand mal seizure. Unfortunately, there are quite a number of people out there(including doctors) that are unaware of the many types of seizures there are. Many people who have been misdiagnosed with psychological disorders have often found to actually have epilepsy/seizures instead or in some cases, both. He told me that instead of just having me thrown on an MRI again, he is going to refer me to a neurologist and I can discuss with him or her about what is going on and where we need to go from there.

Although, I am not very happy about this suddenly happening in my life and I don't know how I am going to cope, I am happy that I have an answer. For years, I had no answers. My old doctor look stumped by the description that I gave him. The MRI was clean and I was hopeless. I was starting to believe this mess was all in my head. I talked and asked questions to anyone who would listen: family members, friends, people on forums such as this one. Anyone who had an answer, I was willing to listen. I spent years searching endlessly for an answer. At the very least, I am happy for that.

:woot:
 
Congrats! Whatever the case, you have some answers AND a good attitude. Some more asking and discovery may be in order and at least you have a real direction to go with.
 
wow.mind lending me some bravery? my docs just look at me puzzled and say its just me with no testing...i feel bad cuz i just changed docs and shes nice but not helpful.pass me off as a pysc case i guess.but im happy for u maybe now u can gain alittle more control
 
... Unfortunately, there are quite a number of people out there(including doctors) that are unaware of the many types of seizures there are. Many people who have been misdiagnosed with psychological disorders have often found to actually have epilepsy/seizures instead or in some cases, both. ...

Yep.

http://www.coping-with-epilepsy.com/forums/f23/epilepsy-101-part-faq-part-tips-advice-1255/

http://www.coping-with-epilepsy.com...ex-partial-nead-nes-pnes-including-ptsd-1680/
 
Although, I am not very happy about this suddenly happening in my life and I don't know how I am going to cope, I am happy that I have an answer. For years, I had no answers. My old doctor look stumped by the description that I gave him. The MRI was clean and I was hopeless. I was starting to believe this mess was all in my head. I talked and asked questions to anyone who would listen: family members, friends, people on forums such as this one. Anyone who had an answer, I was willing to listen. I spent years searching endlessly for an answer. At the very least, I am happy for that.

:woot:

I had something similar to this going on with my back.

For years I had horrible back pain. It got worse through the years and sometimes I'd end up in the ER because I couldn't move. I went to several different drs and I think if you can name the test I had it done. But all the drs said that there was nothing wrong and just gave me pain medicine.

At the beginning of the year I went to a new dr in the area who did an x-ray (a simple thing that I'd had done several times) and told me I had a herniated disc. It was so bad at that point because it was almost bone on bone so it had been there for years.

He said the only way to really fix it and make the pain go away was to have surgery. I wasn't happy about that but at least I found out what was going on and it wasn't all in my head either!
 
You Will be able to Cope - you've done a fantastic job so far! :rock:

When it gets overwhelming, stop thinking about the overwhelming bits such as how life will work out tomorrow. Focus on what is happening at the moment. When I start down the path of "what will happen" and "how can I do this", it leads me directly to depression.

But once I recognize it - the worry and fear about the future etc - I turn my focus to today, to now, to this very moment. The "right now" isn't (as) scary, you can handle the details of now. And if you can't then make your moments smaller, one time I went down to nano-seconds and it got me through!

When you are feeling strong, take a good look at all you have been through and give your self a big hug :hugs: because you have been through a lot and you are out on the other side :woot:

There is the whole epilepsy thing to deal with but now you have something specific to deal with - ain't it grand to finally find a wonderful doctor who can help you make sense of it all!

Congratulations :clap:
 
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