- Messages
- 5,827
- Reaction score
- 842
- Points
- 268
I went to my neuro today for my VNS appointment, witch is every four months. I'm on my second one, had the first implanted in 2007 which I've probably said on here.
I have been having a lot more seizures than I normally do which is around 8 a month. He asked if I wanted to adjust the settings up .25 more. I told him I know that I was having more seizures because of my grandma's death. I said that I'd like to wait till my next appointment to see what's going on and adjust it then if we thought it needed to be.
Right now I'm on 3.00, on for 21 seconds (I think that's what he said I have trouble understanding him at times) and off for 30. I'm also on medication.
I know it took a good while for be to find the right settings to help with my seizures. I had to work my way up slowly to get there. It hasn't stopped them but greatly decreased them and they aren't as bad. When the battery died in the first one I could tell because I began having more seizures.
At first the only thing that I had problems with was the tingling in my throat, it may have lasted for a week then I wouldn't notice it. Now if he adjusts it I only notice the tingle for a few hours, if even that long. Now in general the only problem that I have is shortness in breath.
I wish you were having some benefit from it.
I have been having a lot more seizures than I normally do which is around 8 a month. He asked if I wanted to adjust the settings up .25 more. I told him I know that I was having more seizures because of my grandma's death. I said that I'd like to wait till my next appointment to see what's going on and adjust it then if we thought it needed to be.
Right now I'm on 3.00, on for 21 seconds (I think that's what he said I have trouble understanding him at times) and off for 30. I'm also on medication.
I know it took a good while for be to find the right settings to help with my seizures. I had to work my way up slowly to get there. It hasn't stopped them but greatly decreased them and they aren't as bad. When the battery died in the first one I could tell because I began having more seizures.
At first the only thing that I had problems with was the tingling in my throat, it may have lasted for a week then I wouldn't notice it. Now if he adjusts it I only notice the tingle for a few hours, if even that long. Now in general the only problem that I have is shortness in breath.
I wish you were having some benefit from it.