My wife

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Thank you for the update! I’m really glad things seem under control for the moment. Trying to get an accurate diagnosis is so frustrating. How can you treat the problem if you don’t know what it is!? Tell her to hang in there. There are a lot of people rooting for her over here.
 
docs say she doesnt need the keppra or the tegrotol because they are not epileptic siezures.
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But weren't they giving her Keppra to stop the seizures in the ER? If it helped, then that suggests that here seizures were epileptic in nature. I suggest that she keep looking for an epileptologist who can help.
 
They are treating the test results and not treating her if you ask me. Its getting me revved up. What ever happened to treating the patient!
 
Nakamova said:
But weren't they giving her Keppra to stop the seizures in the ER? If it helped, then that suggests that here seizures were epileptic in nature. I suggest that she keep looking for an epileptologist who can help.
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This is exacly what I was going to say too! I agree, I would be looking around for new doctor who can help! Tell her were thinking of her! I hope she starts to feel better soon!
 
Typical…. most doctors never want to listen to the patient. At best they fane interest. For them, psychology and physiology are two very different things. Hopefully in a few decades that will be a ridicules notion. I’m sorry you can’t get the medical staff to listen. Keep pressing on them! Hopefully they will get to the bottom of things.

If she’s feeling more like herself, maybe L can use her background in sociology/psychology to get them to listen. :)
 
I agree with all the above. It seems like getting another doctor involved is in order.
Have they said what they think is causing her seizures if not epilepsy?

I wonder if you could request her EEG, MRI, etc be over-read at a teaching center either in Canada or the USA. Harborview (Univ of WA) and Swedish in Seattle WA are both noted for their epilepsy programs and they both offer outside or tele-readings and have epileptologists on staff. Montreal Neurological Hospital affiliated with McGill University possibly has an epileptologist.

Hugs to you for your caring support of LJ. LJ, we are all here supporting you.

Mary
 
She does have a really good Neuroligist. He's not local though, and he happens to be on vacaction this week....go figure. I have been in contact with his nurse everyday this week and she has been adding everything that has been going on to Lisa's chart. He's not the one that has told her to stop taking her meds. It's the docs at the hospital we are at that have decided that. They have a psycoligist coming to see her tomorrow, shes not thrilled about that at all. It just seems that they believe if it's not epilepsy then it must be psycological, I dont think its that black and white. If its not epilepsy, thats great, but what the heck could it be! I'm not a doctor, but in my humble opinion they are way to quick to disregard the fact that her hardest times are when she is mensturating and when she is ovulating....also the cyst she has on her pituitary gland....or the 2 abnormal foci she has in her head. were just not buying into the stress thing....seems like the doctors at the hospital are taking the easy road! I just hope the pshycoligist doesnt mess her up to bad. poor thing.
 
Omg ,hold your guns.
Doctors are general all around , but Neurolagists are so specialized,for give spelling....not to put a scare in you but try your best to wait for what the neurolagist says. my cousin made the fatal mistake by listening to what a doctor said and to this day we believe the neurolgist was right...
Theres alot of positive vibes here.were still praying.
Rich.
PS; my late wife had tc seizures all her life and as longs as i had known her her worst seizures were at the onset of her period.
 
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