Nearly lost Sharon

[brain]

This is Kim, Steve's girlfriend and future wife, we are sorta engaged. I am posting this very quickly before I go to work. I am sad to report that the family and I are very badly shaken up, for we have nearly lost Sharon, which many of you know her, to SUDEP last night. The whole situation was so scary, Sharon was at death’s door. She is currently recovering and resting. I am learning so much from Sharon and Steve. My heart is breaking for both of them; my baby has told me many times how he’s nearly lost his mom and I thought those were stories, until I saw and witnessed it all last night, and all of this is not a joke, this is for real. And this family knows and expects it all. While he is going to report it to the Neuro when they open, I had called earlier when she had seizures in the courthouse earlier to the Neuro’s office. Sharon is the sweetest person I’ve ever known, she’s like a second mom to me. I’ve learned so much from her that my mother never taught me, she helps people so much. I need her. I just do not understand why people are so mean to her, having heard the mean and nasty things people have said to her and it makes me very, very mad and pissed off about it. They do not know this woman at all. Sharon is the most generous and kind-hearted soul. I don’t want her to go yet, I need her. I can see why epilepsy is tearing up my which will one day be my husband. She is not a mean person; she is just strict and orderly. I want her to be able to see her step-grandson, who is currently with my mom temporarily while I get all my belongings over here in this place. I am beginning to hate epilepsy as Steve hates it so much. I want you guys to know I wear that Epilepsy Foundation band since the day Sharon gave it to me and it has never come off and I have people asking about it all the time!!! And I want you to know, I am almost a certified Medical Assistant, I am learning about epilepsy, I hate it and what it does and my original plans were to proceed in becoming a Nurse but having no idea in what field, you can be assured now in what direction I am going for I am on your side!!! Please keep Sharon in your thoughts, she really is fighting this but it hurts me to see her degrade downwards like this. I gotta go!

Kim <3

 

[Georgiagirl88]

God Bless Her! I will keep Sharon and all of you in my thoughts and prayers.
Please give her all of our best wishes and prayers and tell her we are thinking of her. Please let us know how she is doing if you could.

Michelle

 

[Cint]

I will keep her in my thoughts and prayers. She is a wonderful person!

Cindy

 

[angel]

Ill be praying for Sharon all day! Tell her we love her and give her a BIG hug for us when you can.

"You are right she is one of the sweetest people I know."

Lorrie

 

[RobinN]

Please let her know she is in our thoughts.

 

[Bernard]

Thank you Kim for keeping us updated. Unfortunately, I've been expecting something like this for a while. Sharon has been keeping me well informed of her progressively degenerating condition for some time.

:e:

 

[josieb]

Kim:

Please let Sharon know that we are all so sorry to hear the news. I will also include her in my prayers. I wish you and Steve the best, and please keep us updated.
Sincerely,
Josie

 

[Meetz1064]

OOoooooooooh

Please tell her that she is in ALL of our positive thoughts and prayers, as are both of you. May Heaven help her through this rough time.......

 

[BuckeyeFan]

God Bless my friend. She is my inspiration. She is so strong emotionally.

Steve and Kim, you are both in our thoughts and prayers!

 

[Birdbomb]

Come back to us Sharon, we won't be the same without you. Friends like you are hard to find. Everyone will be praying for you.

 

[seizures4ever]

Oh Sharon,

Prayers, hugs, good thoughts...all of it is coming toward you!

Please everyone keep us updated.

Julie :e:

 

[brain]

I am here. My Neurologist's Office has
been alerted, but I'm awfully woozy if
you know what I mean. Right now all
I can do is wait for their response back.

I appreciate greatly my son's quick response
while not 'new' to him, but it really upset
Kimberly, all I can remember was having
auras. Multiple ones, and just told them
both to let me sleep for an hour, and they
did tell me they checked on me before going
outside and I was in the middle of my bed
sound asleep; and since it was raining, they
opt to let me sleep longer since I had a very
long day and needed the rest, and one of
my son's best friend was over so they were
out there talking and when he came in he
thought he had heard me talking, and notified
my son, and he then went to check on me;
and that's when the whole thing unraveled.

I have no idea what happened, but it really
angered and upset him, he first thought my
neck was broken because of the position and
angle it was in between the bed and nightstand
and was in a very awkward position and it wasn't
talking but gurgling. I was aspirating.

He told me how he lifted me up carefully after
seeing that my neck wasn't broken, and had me
flat on my back and it caused the aspiration worse,
and he flipped me over on my stomach and it made
it even worse where he had to put my head and lungs
downwards on the side of the bed and hold my head
while all the "water and stuff came running out of my
mouth" and then started choking and trying to breathe.

While it was very slow, and progressive, my flesh began
to resume back to normal, however, they could not
understand a word I was saying (slurred speech) and
was not making any sense and my eyes were out of
it. His girlfriend/fiancee and buddy wanted him to dial 911
but he told them all they would do is discharge her
and won't do anything. (TRUE) And he realized he had
forgotten to check my AEDS, there
had to be a reason why I had told them to wake me up
in one hour, and there it was, and slowly they gave me
my meds, Clonazepam first, because it's fast acting,
then the Zonegran. And yes, they told me I choked up
on it (aspirating). They tried to get me to stay in bed
and restrain me down but I was fighting them (but I have
no memory of this), so my son just grabbed my great
grandfather's cane and told everyone to back off, and
there I stood up. They were telling me how unsure
they were in what was going to happen next, Kim had
to leave, she was already in tears.

Was walking like a "drunk", pointing - sign "eat" - "drink"
and they knew I couldn't eat or drink. Slowly and gradually
I was coming out of it, not 100% there, but enough to
contain myself to know where I was and my speech was
then becoming more "understandable" but distorted.

My head was pounding, and I have a lot of little bumps all
over the left side of my head, my nose hurts, my cheekbone
hurts, and my whole body just literally aches. I feel like I
had just tried to bench press 1500 lb weights last night;
and when I woke up this morning I felt like I had been beaten
up by a gang with baseball bats.

I didn't like hearing the news from the Neurologist's Office
for me to stay awake, because my head still hurts, and
I want to go back to bed and go to sleep!



I feel like I'm on a video EEG! Can someone send me

and make it triple Expresso?



Right now, my son is upset, he really gets mixed emotions
about all of this, it's happened before, but it's been a long
time at least 10-11 years ago (I think) with the last close
brush with SUDEP.

However, with Kim, she's becoming more and more
interested in Epilepsy for once she becomes certified
in Medical Assistant, she had plans to become a Nurse,
and just had no idea which field to go into, but now
she does; and having witnessed and experiencing the
dreaded Epilepsy - she's aiming high for Neurology,
she can become a very fine Neurological Nurse or an
Epileptologist's Nurse. One comment she's even made
before she even knew I had Epilepsy was that she felt
that a lot of Nurses and Doctors JUST DO NOT LISTEN
to their patients or partially listens to them!

Kim has permission and access to my accounts in cases
like these, since I've put away the other computer that
has voice activation that my son uses. Both Kim and I
are trying to teach my son, Steven, how to use the
computer without having to rely on the voice activation
to do all the work for him.

But meanwhile, I have to stay awake, and my head is
killing me. Yes, my mother is fully aware of what all had
happened, it's only a matter of time.

HOWEVER - the tide is changing, there just may be
a silver lining, since my trio of Doctors have the "Proof
in the Pudding" all upfront now. I have a 'feeling' some-
thing is going to change very fast now if it's not too
late; and I won't even have to go very far as originally
was going to be determined before.

I appreciate everyone's thoughts and prayers. But it's
going to be one heck of a day trying to stay awake here!

:?

 

[Georgiagirl88]

Oh Sharon,

Thank God you are o.k. and with us again!! I am so glad you're o.k. We were all so worried. We were sending our thoughts and prayers to you and I think they may have reached you! You rest and take care of yourself and get in touch with those Drs. You have a wonderful son and Kim is so caring too!! Thank God for them being there. You take care!!!! And check in when you feel up to it!!

Hugs!!!!
Michelle

 

[Bernard]

Welcome back Sharon. :woot:

You know when the day comes, you will be greatly missed. Until then, we're going to :whip1: on you and keep you on your toes. fft:

 

[Meetz1064]

Oh, my

all I can say is thank the Heavens you're still alive!

I hope the doctors can do something.......and FAST...........

I will be saying MANY PRAYERS and POSITIVE THOUGHTS for you, darlin'......

:rock::rock:

 

[josieb]

Sharon:

It's really good to hear back from you so soon. You've been through so much. Hopefully now, your doctors will act quickly. I wish you well!
Josie

 

[Birdbomb]

Happy dance!

Not yet...can't have you...your work here isn't done. Please tell your son he is my hero today. What an emotional rollercoaster! I'm so grateful and glad things have worked out. Oh gee, I need a drink and it's not even noon so I'll just have an extra cup of coffe in your honor!

 

[speber]

Let's go Birdy.....

Drinks on me!.....SHEEESH!!!!

Sharon you know how to shake things up! (no pun intended...really!)

I'm so glad you are okay. Kim and Steve, I'm glad Sharon has you around!

Speber
:rock:

 

[TeeTees]

FFS Sharon - you've gone and made a grown man cry....

Please don't leave me now - you're such an idol to me, and everyone else around you I'm sure

I'll have you in my prayers tonight for sure.....if there's a God up there, he'd better do his magic and help us keep you, as I don't know what I'll do without you.

 

[Nancy]

(((Sharon))) I read just Kim's posting over on NeuroTalk and came flying over here to see if there was anything more recent.
Whew ....... Thank God.
I hate this epilepsy crap more ever day.