Need advice and understanding please help me.

[Amberwilliamson8580]

EEG results of my 5 year old son:
Intermittent spikes and slow wave discharges on f8 and t4 areas throught much of the recording and frequently. Compatible with seizure activity...


He has been on two different seizure meds and his seizures are very frequent with about three in a row. An a nathargic period up to 10 hrs after please help clue me in on this...


MRI found a minimal cyst on cranial lobe and doctor says not possible cause..
Does anyone know hats going on here??/

 

[Fedup]

Amberwilliamson8580

Amber welcome to CWE what exactly do you want answers to, is it the EEG results or epilepsy. Put it simply there is nothing wrong with the EEG, it is showing where the spikes of electricity in the brain are occurring, The MRI I am not sure about but it looks from what I can tell all is ok except for big and confusing words, I am no doctor Amber so I cannot read them for you but from my little bit of my own thats how it looks. But sit down with the doctor and say listen you have got to explain this in simple terms, terms I understand, this will help ease your mind. Remember I am not a Doctor.

 

[Chaz1]

Welcome to CWE Amberwilliamson8580,

My Son 27 has epilepsy....like your Son he shows seizure activity on EEG..

Took me long time to learn to cypher EEG results ( i learnt via internet), if you not confident to do this as fedup says, back to doctor with all your questions if you can and request full explanation (male list)

Not only meds can help control seizures......2 meds already? Keep you options open and research, you are your sons advocate…

http://www.coping-with-epilepsy.com...-children-epilepsy-doesnt-respond-meds-19814/

Keep seizure dairy and note everything you see….will be helpful as time passes and will keep you prepared for doc appointments, or too easy to forget...


Great info...
http://www.theseeprogram.com/html/s_e_e__library.html

 

[qtowngirl]

hi amber,
did they say what type of cyst and where it is located? deep or closer to the skull or...?
they found an arachnoid cyst unintentionally when trying to diagnose my seizures, and doc after doc has either said 'it's not the cause, you prob had it since birth,' or have taken a hard look at it (after seizure unit tonic clonics), and said the same, 'it hasn't changed in years and it's not a cause or concern.'

 

[Amberwilliamson8580]

The neurologist said it is seizures.. They are called absence seizures and he is most deff having them. They just cant seem to find the cause to them. An yes it is an arachnoid cyst it is between the bran and the skull by the spinal cord. I just dont understand this all he has seizures at least three times a week and mutiple times when he is having them.

 

[Amberwilliamson8580]

I dont understand what causes these or how to help control them

 

[jyearta]

You might want to ask for a copy of medical record, any test results. If you ever change Dr. take copies with you.

 

[Amberwilliamson8580]

I have all and every record sitting in front of me

 

[jyearta]

I have all and every record sitting in front of me

You are doing all the right things.

Keep us posted.

 

[Nakamova]

Hi Amber, and welcome to CWE.

I don't understand what causes these or how to help control them.

The majority of seizure disorders are of unknown cause. Sometimes, by keeping a seizure diary, you can track down a secondary cause/trigger that makes someone more vulnerable to having a seizure. Triggers can be any of a wide range of factors -- things like fatigue or low blood sugar, food sensitivities, infections, etc.

Your neurologist should be able to provide treatment suggestions. often, medication is the first choice, but there is also a dietary approach (mentioned by Chaz in a post above), that uses the Modified Atkins Diet -- it's considered especially effective against absence seizures.

If you're not sure about the tests or the treatments, you shouldn't hesitate to get in touch with your son's neurologist. It can help to write all your questions down, and record the answers as well.

Best,
Nakamova