Hello, I was wondering could someone give me a little insight into my condition and if anyone had any experience with what I am currently going through.
I started having episodes at the end of 2015 Christmas to be exact technically I didn't have a seizure never in my life I slept walked, when I slept walked I was still in the dream but could hear my surrounding, I heard my mother ask what was I doing, in turn, I made myself fall to wake myself up. They call the Paramedic they ran a series of test in the ER couldn't find anything gave me 1mg of Keppra just in case it was a seizure. This has happened to me before in 2010, I then woke myself up also by falling also. Every time this has happened when I've been under extreme stress. But I've only had two instances of sleepwalking 2010 and in 2015
Now my condition has transformed from sleepwalking into seizures I haven't had any recent episodes of sleepwalking but in 2016 but I've had a total of 10 seizures in 2017 I had 8 this year 2018 I've had only 2 so far. It seems the seizures didn't start until Keppra was introduced and Dilantin they started me on Dilantin when I had my first seizure in my living room no one saw it they just found me unconscious I could still hear everyone around me but I couldn't move and just seen black as I was being taken away by the Paramedic. I do remember leading up to it happening I was extremely angry and on a video chat call, at the time I said to myself as weird as this might sound ''It's so bright in this room I could have a seizure and then I just blacked out''. They admitted me to the hospital and started me on Dilantin they took me off of Dilantin and started me on 250mg of Keppra but only gave me 30 day supply of it and told me to take the whole 30 days and to follow up with a neurologist if I have a seizure after the 30 day supply of Keppra then I am epileptic. After the 30 day supply was up I started having seizures back to back hence the 10 seizures in the year 2016 they kept increasing the dosage of Keppra until I was a zombie at 3,000mg I couldn't take it anymore and I told them could they please let me come down.
I have been having multiple types of seizures since 2016-2018 from Tonic-clonic seizures, Myoclonic seizures, Focal (or partial) seizures now my seizures have transformed into Myoclonic seizures where I laugh or jerk twice before the seizure then my head turns right and my body just goes out of control I'm not sure if they are myoclonic seizures or gelastic seizure I don't remember anything after these episodes and I practically destroy my tongue. As a coincidence, I remember reading a poster in the neurologist about gelastic seizure now suddenly I'm having these type. I'm starting to think I'm causing all of this stuff.
I have had 4 EEGs 1 Sleep study I don't know how many blood test 2 MRIs 1 Cat Scan they are all normal I'm just lost as to whats going on with me the Doctor isn't giving me any answers so now I'm here for a little help I live in a small town they have a clinic but its so backed up I can only get in every 6-10 months. Could the Keppra and Dilantin have started me to have more seizures could I possibly be Non-Epileptic Seizures or (pseudoseizures) and just need to see a psychiatrist am I going crazy?
I started having episodes at the end of 2015 Christmas to be exact technically I didn't have a seizure never in my life I slept walked, when I slept walked I was still in the dream but could hear my surrounding, I heard my mother ask what was I doing, in turn, I made myself fall to wake myself up. They call the Paramedic they ran a series of test in the ER couldn't find anything gave me 1mg of Keppra just in case it was a seizure. This has happened to me before in 2010, I then woke myself up also by falling also. Every time this has happened when I've been under extreme stress. But I've only had two instances of sleepwalking 2010 and in 2015
Now my condition has transformed from sleepwalking into seizures I haven't had any recent episodes of sleepwalking but in 2016 but I've had a total of 10 seizures in 2017 I had 8 this year 2018 I've had only 2 so far. It seems the seizures didn't start until Keppra was introduced and Dilantin they started me on Dilantin when I had my first seizure in my living room no one saw it they just found me unconscious I could still hear everyone around me but I couldn't move and just seen black as I was being taken away by the Paramedic. I do remember leading up to it happening I was extremely angry and on a video chat call, at the time I said to myself as weird as this might sound ''It's so bright in this room I could have a seizure and then I just blacked out''. They admitted me to the hospital and started me on Dilantin they took me off of Dilantin and started me on 250mg of Keppra but only gave me 30 day supply of it and told me to take the whole 30 days and to follow up with a neurologist if I have a seizure after the 30 day supply of Keppra then I am epileptic. After the 30 day supply was up I started having seizures back to back hence the 10 seizures in the year 2016 they kept increasing the dosage of Keppra until I was a zombie at 3,000mg I couldn't take it anymore and I told them could they please let me come down.
I have been having multiple types of seizures since 2016-2018 from Tonic-clonic seizures, Myoclonic seizures, Focal (or partial) seizures now my seizures have transformed into Myoclonic seizures where I laugh or jerk twice before the seizure then my head turns right and my body just goes out of control I'm not sure if they are myoclonic seizures or gelastic seizure I don't remember anything after these episodes and I practically destroy my tongue. As a coincidence, I remember reading a poster in the neurologist about gelastic seizure now suddenly I'm having these type. I'm starting to think I'm causing all of this stuff.
I have had 4 EEGs 1 Sleep study I don't know how many blood test 2 MRIs 1 Cat Scan they are all normal I'm just lost as to whats going on with me the Doctor isn't giving me any answers so now I'm here for a little help I live in a small town they have a clinic but its so backed up I can only get in every 6-10 months. Could the Keppra and Dilantin have started me to have more seizures could I possibly be Non-Epileptic Seizures or (pseudoseizures) and just need to see a psychiatrist am I going crazy?
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