Hello, all! I'm not sure if I'm using this correctly, it's my first time on any type of forum. To start off, I'm 21 and living in Chicago. I thought my seizures were a part of my past so I could move out of my parents house and start a fresh chapter, but I guess they threw a curve ball and came back.
I've had what doctors call "tremors" in my left hand since I was twelve. Some doctors claim this was due to repetitious behavior (I swam a lot and played trombone). When I was 15, I fell off a bus and remained conscious during a 3 minute seizure on the ground. I blacked out towards the end and was diagnosed with epilepsy. I had seizures during sleep, up to 7 a night, on and off for about a year until medication (Depakote, Zonagram, Topamax, etc.) slowed them to just hand tremors.
I had thought my seizures were over until about a week ago (9/08/09) when I had a hand tremor that evolved into a seizure on a very busy street in front of a crowd of people. I was fully conscious during the 2 minute seizure, which led my neurologist to believe it was a pseudoseizure. Currently on 200 mg Topamax. I've been getting terrible headaches lately as well. My hand tremors are getting worse and every time I get one, I freak out because I think it's going to be a seizure.
I don't know how anyone else feels, but I was really embarrassed when I had my seizure. I know I shouldn't because I can't help it, but none of those people that crowded around me know anything I've accomplished. They'll walk away, jump on a train and tell their families that night that they saw some girl on Michigan Avenue have a seizure. I'll forever be "some girl that had a seizure." It's humiliating.
ANYWAY, I'm writing to ask anyone on dietary restrictions that have been helpful with seizures, particularly pseudo seizures. I've read up a lot on gluten-free diets and lactose-free, but I would like to hear others input. I've heard some others speak on Atkins and high fat diets.
If anyone is out there and I actually posted this correctly, and anyone knows anything about what I'm talking about, I'd really appreciate some feedback. I don't know anyone with epilepsy or hand tremors. I'd like some company.
I've had what doctors call "tremors" in my left hand since I was twelve. Some doctors claim this was due to repetitious behavior (I swam a lot and played trombone). When I was 15, I fell off a bus and remained conscious during a 3 minute seizure on the ground. I blacked out towards the end and was diagnosed with epilepsy. I had seizures during sleep, up to 7 a night, on and off for about a year until medication (Depakote, Zonagram, Topamax, etc.) slowed them to just hand tremors.
I had thought my seizures were over until about a week ago (9/08/09) when I had a hand tremor that evolved into a seizure on a very busy street in front of a crowd of people. I was fully conscious during the 2 minute seizure, which led my neurologist to believe it was a pseudoseizure. Currently on 200 mg Topamax. I've been getting terrible headaches lately as well. My hand tremors are getting worse and every time I get one, I freak out because I think it's going to be a seizure.
I don't know how anyone else feels, but I was really embarrassed when I had my seizure. I know I shouldn't because I can't help it, but none of those people that crowded around me know anything I've accomplished. They'll walk away, jump on a train and tell their families that night that they saw some girl on Michigan Avenue have a seizure. I'll forever be "some girl that had a seizure." It's humiliating.
ANYWAY, I'm writing to ask anyone on dietary restrictions that have been helpful with seizures, particularly pseudo seizures. I've read up a lot on gluten-free diets and lactose-free, but I would like to hear others input. I've heard some others speak on Atkins and high fat diets.
If anyone is out there and I actually posted this correctly, and anyone knows anything about what I'm talking about, I'd really appreciate some feedback. I don't know anyone with epilepsy or hand tremors. I'd like some company.