Hi,
I'm not completely new to epilepsy as I've had it for going on 26 years. TLE. I thought I was on here but It turned out I wasn't.
Over the last 8 years I had to have a whole lot of testing because they were unsure what was going on with my TLE as I was having seizure activity that was a...
I'm now on 4 AEDs (Keppra, Epilim, Clonazepam and Topamax). Since starting Topamax nearly 2 months ago I've noticed the usual side effects like dizziness and nausea which I can handle, I've also lost 15kg (33lbs) which I'm totally fine with.
I'm really embarrassed, I'm 20 and this isn't exactly...
Hello!
I'm female, 52, and had my 1st ever seizure 5 days ago. I'm told it was a complex partial.
After a bit of reading, I'm just wondering about my recovery time.
I took a day off work(thinking that was sensible) but when I went back 48 hrs after the seizure thinking I was fine, I felt...
Hi,
I'm Cassandra and I've been diagnosed with epilepsy since age 4. I've been a bunch of different AEDs and am currently taking Keppra, Carbatrol and Topamax. After a clean MRI and some blood work recently my doctor referred me back to the GYN. My testosterone came back elevated. Keppra...
I am curious how many people out there on levetiracetam and/or topiramate have noticed more control over their emotions or even a lack of emotions at times.
Reading articles in neurological journals on pubmed have shown that both of these medications are sometimes prescribed as mood...
Hey long time no see everyone!
So went to see the shrink and to keep me on some meds that will work on my seizures but also on my bi-polar she is taking me off my topamax and putting me on lamotrigine.
And my question is do I take this in the Am or at night?
I'll be starting the pill 1 daily...
My epileptologist increased my Topamax to 300 mg (I also take Keppra) and I have been having side effects from it-- nausea, vomitting, GI problems, and because of those, headaches. They tend to fluctuate so the nausea is pretty consistent, but the other ones are not (the headaches are not)...
hi all!
I'm new to the forum and have a meds question.
my story - diagnosed at 12 (now 34), partial, now 99% nocturnal. have been on 300mg lamictal & 200mg epilim for about 10yrs which worked for some time but I'm still having many seizures and have finally accepted that I need to change...
So I've had a long time where life was good.
In the last 6 months though I've been having nocturnal seizures again, I went for so long without any that life was going great now it feels as though I've ben taking steps backwards.
My meds were changed back to topamax and Gaba together this time...
Hi I'm a new member and my husband and I have an 8yr old daughter who had had seizures youre she was 5mos old. Started with infantile spasms to myoclonic jerks and twitches to currently tonic seizures caused mainly by outside stimuli (reflex epilepsy). She underwent brain surgery two weeks ago...
Has this happened to anyone else on topamax?
I've had pretty clear skin my entire life, up until now. I started topamax a few months ago and now I have acne all over my forehead and it's starting to spread to other areas of my body. :sad:
Until I go to a dermatologist does anyone have any...
Hi all!
I am a mom to ten kids, ages 24 to 7. We have a charmed life and I didn't even know it! None of my other kids have had any medical condition more serious than ear infections, brace and broken arms. My sweet baby boy had his first seizure 4 3 years ago. It seemed to be an isolated...
I am 21 years old and have been taking topamax for almost 5 years now and it has worked for me in the sense that I do not have seizures. As for the side effects I get them often. Weight loss, Numbness, Kidney stones. I wonder now if it affects me psychologically as well. My friends always say I...
This is my first week on topamax. Taking 25 mg now and working my way up to 100. So far, so good but it's early. Plus the possible side effects can be crazy. Guess I am looking to hear good things from people.
Hey all,
So my new neuro is tapering slowly my topamax since he thinks it mave been casuing the numbness and memory issues and after tomorrow i'll be complety off topamax.
yesterday I fell like my body was having small "clusters" of sps if that makes any sense, i'd lay in bed try to sleep and...
Hey Gang!
I cant remember if I've told you all this:
My new neuro has changed my dose on both my meds:
Keppra gen: 1000mg 2x daily
Topamax gen: 50mg 2x daily
still ahving some seizures not as often so this is good!
less than before so i'm happy.
My neuro is running test to see what else is...
hello friends,
Yesterday was a rough day,
neuro's nurse thought i had another tia, was nothing like the last one so I blew them off. (plus last time I went in the told it was memory issues)
My wife just found a lighter under a ice pack from me (dont remember putting it there) she drilled the...
well did like everyone said I called and left a message for my neuro, waited about an hour and the nurse called back neuro was out and they had to call and leave a message for him and leave the details about what happened to me on saturday, well about an hour later the nurse called me back with...
So Finally got a DX!
I have seizures! and a mild form of PNES.
The new neuro actually listen and is looking at over 300 plus papers I brought in of med records and my seizure journal, and listened to me and my wife and my kids that are old enough to talk about what happens to me when I have my...
had a minor seizure last night, lasted about 5 seconds @ 930pm gave me a minor migraine woke up this morning had a wicked migraine and is now a dull throb but is still bugging the heck outta me, my back is still hurting me, my head is still fuzzy and after everything I've been through with neuro...
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