So frustrating! I pushed the button 4x and the doc informed me that there was no seizure activity! She suggested psychosomatic or other organic condition possibly!! This was at the 24 hour mark. REALLY? She said I could go home! I said no and wanted to stay to capture one of my typical episodes.
My episodes here are only lasting about 5 sec and because none of them showed up then she is yanking my diagnosis. I'm serious! I said I was suppose to be here for 5 days and she said fine but she was doubtful I would have seizures because what I describe does not sound like seizures. At this point I was balling. She questioned why I was upset and why I would even want the diagnosis of E.
I spent a miserable year not diagnosed and feel like I would be back to square one. Not to mention I'm in the military. A diagnosis I am hopeful to waiver (2 years success so far) but psychosomatic!
I was frustrated and said I have been with two neurologist that both did EEG and told me (diagnosed me) with a seizure disorder. If this doc doesn't think I have it then why have I spent the last 2 years on 5 different meds, dealing with side effects and my current drug Kepra that is life altering for my entire family! I can't believe she questioned why I would be crying! She said she looked at my last EEG (the actual test) not just the report and commented that my current neuro "overread" it.
I once again feel dismissed and made to feel like I'm lying. This is actually harder than dealing with E. She also said that seizures have patterns and what I describe is not a pattern. I told her I'm dizzy almost all day with anywhere fom 2-15 episodes per day of a shifting sensation and feeling of the earth going to fall out underneath me. My brain will feel like its moving inside my head and my eyes feel like their going in circles even though others can't see it. My head at times will ever so slightly move back and forth that I feel and my husband can see. She said that's not a seizure!
I know someone out here will have some encouraging words/advice to help me.
Thank You
Sheri
My episodes here are only lasting about 5 sec and because none of them showed up then she is yanking my diagnosis. I'm serious! I said I was suppose to be here for 5 days and she said fine but she was doubtful I would have seizures because what I describe does not sound like seizures. At this point I was balling. She questioned why I was upset and why I would even want the diagnosis of E.
I spent a miserable year not diagnosed and feel like I would be back to square one. Not to mention I'm in the military. A diagnosis I am hopeful to waiver (2 years success so far) but psychosomatic!
I was frustrated and said I have been with two neurologist that both did EEG and told me (diagnosed me) with a seizure disorder. If this doc doesn't think I have it then why have I spent the last 2 years on 5 different meds, dealing with side effects and my current drug Kepra that is life altering for my entire family! I can't believe she questioned why I would be crying! She said she looked at my last EEG (the actual test) not just the report and commented that my current neuro "overread" it.
I once again feel dismissed and made to feel like I'm lying. This is actually harder than dealing with E. She also said that seizures have patterns and what I describe is not a pattern. I told her I'm dizzy almost all day with anywhere fom 2-15 episodes per day of a shifting sensation and feeling of the earth going to fall out underneath me. My brain will feel like its moving inside my head and my eyes feel like their going in circles even though others can't see it. My head at times will ever so slightly move back and forth that I feel and my husband can see. She said that's not a seizure!
I know someone out here will have some encouraging words/advice to help me.
Thank You
Sheri