New here and have many questions and fears. Last week on September 2nd my son had a seizure as he was getting ready for school. Around 7:20 am. I heard a horrible thud like something hitting the wall and heard my husband ask him if he was playing. (he is always playing like he's been shot and falling to the floor like he's dying) I then heard two more thuds and my husband started yelling at me to come quick. When I got there my son was sitting on the floor bent over. I took him by the shoulder and pulled him back to see his face, his mouth was bubbling saliva & he tried to speak but it was gibberish. My husband told me later that he found our son face down convulsing on the floor and had got him up. My first thought was diabetic seizure as we have a strong history of diabetes on both sides of the family. I called the paramedics and my son's condition continued to improve to where he was making sense and was moving better although he was very shaky.
We arrived at the emergency room and he was placed in a trauma room and the Dr. came in and began the evaluation. The Dr. decided to do a CT scan and x-ray his hip as my son was complaining about weakness in his right leg. Someone came in and took 4 tubes of blood and they put blood in two bottles that looked like airplane liquor bottles with colored fluid in them. They then started an IV with saline solution. We did the CT scan and then his bed was parked by the x-ray dept. to wait for the other. I was standing by his bed when he started to bow up like his body was drawing and turned away from me. I asked him if somehting was hurting him and pulled his shoulder back to me and as his face turned towards me his eyes were rolled up white, saliva was bubbling out of his mouth with a horrible moan was coming from him. I lost it! I started yelling for a Dr. to come quickly. The came and took his bed back to the trauma room and I could see that he was convulsing at that time. The Dr. said to calm down, he was having a seizure, it was not life threatening and they were taking care of him. He also said if he had another they were going to transfer him to a children's hospital. This was around 10:00 am.They put a shot in his IV and told me it was something to help him sleep. He slept for about 30 minutes and when he awoke had no memory of anything that had happened between the two seizures, although his memory came back later that afternoon. We stayed in the hospital overnight and an MRI and an EEG was also done.
These are some of the things I am wondering, the pediatrician said she thought the seizure could have been caused by low blood sugar. However they took blood before the 2nd seizure and had later told me his blood work was fine. So I don't understand that. Wouldn't low blood sugar have shown up in the blood work results? He has suffered from migraines for awhile and she said it also could have been an atypical migraine but at no time that morning did he say his head was hurting so I don't know about that either. I did notice that the 2nd IV bag they hung was 5% dextrose and 10% potassium if that means anything.
The CT and MRI came back fine but we have not heard from the EEG. It has been over a week and shouldn't we have heard something by now? It makes me wonder that it did not come back normal and they don't want to tell me. We have an appointment with a pediatric neurologist on Sept. 24 and if it is not good maybe they are waiting for him to tell me.
The neurologist that saw him in the hospital said that they did not start medication on the basis of one seizure episode and although he had two that day it was counted as one episode. He said that 10% of people would have a seizure episode at one time in their lives and 94% of them would never have another.
He asked my son if he noticed anything unusual before the seizure and my son said his body felt like pins and needles and then it went numb and also that his right leg felt like it was going to give out on him. My son said as the second seizure started his vision went red and that everything was colored red with a black outline and he couldn't hear anything. He said he could see me speaking but couldn't hear anything. Is any of that similar to anything anyone else has experienced?
He was released from the hospital and the Dr. said to send him back to school the next day. My inclination was not to ever let him out of my sight again. Since this has happened my husband and I feel like we are waiting for the other shoe to drop. I cannot relax am worried all of the time and not sleeping very much for checking on him.
He is 10.5 years old and there is no family history of anything but diabetic seizures in our families. His discharge papers said seizure disorder for the diagnosis.
Sorry for this being so long but I needed to get it out and see if anyone recognized any of these things.
We arrived at the emergency room and he was placed in a trauma room and the Dr. came in and began the evaluation. The Dr. decided to do a CT scan and x-ray his hip as my son was complaining about weakness in his right leg. Someone came in and took 4 tubes of blood and they put blood in two bottles that looked like airplane liquor bottles with colored fluid in them. They then started an IV with saline solution. We did the CT scan and then his bed was parked by the x-ray dept. to wait for the other. I was standing by his bed when he started to bow up like his body was drawing and turned away from me. I asked him if somehting was hurting him and pulled his shoulder back to me and as his face turned towards me his eyes were rolled up white, saliva was bubbling out of his mouth with a horrible moan was coming from him. I lost it! I started yelling for a Dr. to come quickly. The came and took his bed back to the trauma room and I could see that he was convulsing at that time. The Dr. said to calm down, he was having a seizure, it was not life threatening and they were taking care of him. He also said if he had another they were going to transfer him to a children's hospital. This was around 10:00 am.They put a shot in his IV and told me it was something to help him sleep. He slept for about 30 minutes and when he awoke had no memory of anything that had happened between the two seizures, although his memory came back later that afternoon. We stayed in the hospital overnight and an MRI and an EEG was also done.
These are some of the things I am wondering, the pediatrician said she thought the seizure could have been caused by low blood sugar. However they took blood before the 2nd seizure and had later told me his blood work was fine. So I don't understand that. Wouldn't low blood sugar have shown up in the blood work results? He has suffered from migraines for awhile and she said it also could have been an atypical migraine but at no time that morning did he say his head was hurting so I don't know about that either. I did notice that the 2nd IV bag they hung was 5% dextrose and 10% potassium if that means anything.
The CT and MRI came back fine but we have not heard from the EEG. It has been over a week and shouldn't we have heard something by now? It makes me wonder that it did not come back normal and they don't want to tell me. We have an appointment with a pediatric neurologist on Sept. 24 and if it is not good maybe they are waiting for him to tell me.
The neurologist that saw him in the hospital said that they did not start medication on the basis of one seizure episode and although he had two that day it was counted as one episode. He said that 10% of people would have a seizure episode at one time in their lives and 94% of them would never have another.
He asked my son if he noticed anything unusual before the seizure and my son said his body felt like pins and needles and then it went numb and also that his right leg felt like it was going to give out on him. My son said as the second seizure started his vision went red and that everything was colored red with a black outline and he couldn't hear anything. He said he could see me speaking but couldn't hear anything. Is any of that similar to anything anyone else has experienced?
He was released from the hospital and the Dr. said to send him back to school the next day. My inclination was not to ever let him out of my sight again. Since this has happened my husband and I feel like we are waiting for the other shoe to drop. I cannot relax am worried all of the time and not sleeping very much for checking on him.
He is 10.5 years old and there is no family history of anything but diabetic seizures in our families. His discharge papers said seizure disorder for the diagnosis.
Sorry for this being so long but I needed to get it out and see if anyone recognized any of these things.