Here's some advice for when you go to the doctor (and yes, make it a full hour!)
Try keeping a seizure diary of your sleep patterns, what you eat and when, daily activities and stresses. Write down any recent life changes that could trigger seizure activity. Each time a seizure occurs, write down the time, the type of seizure it was and how long it lasted. All of this can help your doc can get a better idea of what’s going on with you.
Also, seek input from people who may observe your seizures — including family, friends and co-workers — so that you can record information you may not know.
Let your doc know how you’re responding to your current medications. Be sure to share your concerns about any side effects, drug reactions, behavior changes, physical changes, trouble sleeping, loss of memory, or even brain fog. Accurate reporting will help you and your doctor make decisions together about a treatment plan that works best for you if your meds aren't doing the job now.
Preparing a list of questions in advance will help you make the most of your time with your doctor. List your questions and the doctor’s answers from most important to least important in case time runs out.
Be persistent in asking your questions until you fully understand the explanation. If you don’t understand a diagnosis or treatment, ask more questions — take more notes.
Make sure you understand the script and whether name brand or generic will make a difference to your condition. And make sure you know exactly what the doctor wants you to do before you leave the office.
Ask about follow-up and get a contact number so if you happen to think of more questions, or forgot something the doctor told you, you can call the office immediately and request the information.
And good luck...