Neurologist Appointment

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gnault

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Well yesterday started out as an interesting day. I asked for a referral to my neurologist probably just over a month ago and knew I would have a reasonable wait as it was a routine appointment. I got a call from my wife saying they had cancellations and I had an appointment at 1015. They wanted to know if I wanted it, of course.

When I was there answer questions I told them a lot of things that were never mentioned before. That resulted with a friendly "you need to tells everything that is going on" look and talk. The appointment resulted in a neuropsychological testing, an EEG double extended or something like that and a higher definition MRI. The MRI is elective so it may be a wait or short notice if there are cancellations.

I was also told that my wife is coming with me next time.

I shared once I was told through text message by my wife that I used to have vocal seizures in church with deeper breathing with signs or groans followed by loud talking. She said they usually lasted about 10 - 15 breaths. They were also happening for probably close to two years and she didn't force the issue that I was denying so no appointments were ever made to get it checked out.

Waiting for my appointments now.

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Hope Everything Works Out For YOU!!!!!

gnault,
I know it can be difficult to tell the doctor about some things when the doctor asks about 'What has been happening with your E since our last meeting?'. This is a very common feeling, so don't feel alone.
I'm sure the doctor has your best health as a goal to meet!

AcsHUman
 
Nice to meet you!!

:hello: Hello and welcome to CWE. You will find a great number of fellow members here to assist you. My thoughts and prayers are coming your way.

Gammaw
 
Hi gnault.
Welcome to CWE! I wish you only the best with your appointment and I hope they are able to find the cause of your seizures. I've had seizures for 44 yrs. and one thing you may want to do if you haven't started to already is keep track of any seizures. Get a calendar and write down what time you had any seizure and the type of seizure or description of the seizure by doing this it will help the Dr. and they may be able to see a pattern in your seizures as to what time of day/night the seizures happen and what days of the month. I also found that if I write down if I'm sick or there's a low pressure in the weather this will sometimes help the Dr. because often that's when I have my seizures. I wish you only the best of luck and May God Bless You!

Sue
 
Porkette said:
Hi gnault.
Welcome to CWE! I wish you only the best with your appointment and I hope they are able to find the cause of your seizures. I've had seizures for 44 yrs. and one thing you may want to do if you haven't started to already is keep track of any seizures. Get a calendar and write down what time you had any seizure and the type of seizure or description of the seizure by doing this it will help the Dr. and they may be able to see a pattern in your seizures as to what time of day/night the seizures happen and what days of the month. I also found that if I write down if I'm sick or there's a low pressure in the weather this will sometimes help the Dr. because often that's when I have my seizures. I wish you only the best of luck and May God Bless You!

Sue
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No need to welcome Sue as we are friends on the forum.

Gilles

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It looks like I didn't mention it here yet. After the appointment I lost my car. I left the hospital, got to the main street and got a lost look on my face. Where is my car? Took about 15 minutes of walking up and down streets to find it.

Gilles

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I try to give my neuro as much info about things as I can and answer his questions as best as I can.

I keep a seizure diary like Porkette described. I write down as much info about each seizure that I can. When I go to see my neuro I type out a list of my seizures and it's easy for us to discuss them that way. This will answer a lot of questions that he might have ahead of time.

I've lost things several times. I could have it in my hand then have to start searching for it for a good while after I set it down. Since I don't drive any more I don't remember how to get to places, even the ones that I'd go to daily when I did drive.
 
I lost my belt recently when I was in the Dominican Republic. I searched for about 10 minutes and then found out that I already had it on. Some people say that everybody does that but when you mix it in with all the other things it helps to build patterns. Things that others don't always understand. Thanks for the reply to my thread.

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I was at the gym today and asked a guy what his name was as he is there pretty much everyday at circuit training when I am there. I looked down, tied my shoes and looked up about 20 seconds later and had absolutely no clue what his name was.
 
I am horrible with names. I don't know if it's because of my epilepsy memory issues or if it's just me in general. I have to meet the person several times and have their name drilled into my head before I'll remember it.

Recently I went out with my husband and his friend to see his brother and his girlfriend. They had been seeing each other for over a year, only met her a few times, and I've been told her name several times. This last time when we went out I'd been talking with her, been told her name then, and about a minute later I introduced her to my husband's friend but her name would just not come to me. I'd seen her several times that night and my husband had told me her name at least 10 times.

When she walked away I told him that I just couldn't remember her name and that's why I didn't tell it to him. Luckily my husbands friend realized that I couldn't remember her name when we were talking, we'd been having a talk earlier about how I can't remember names. He said he just played along, we both actually got a laugh about it!
 
I used to have a great memory, but now I can't trust my memory. Seizures did a lot of damage and surgery last year made it worse. I can't remember names of people I see and talk to often like my neighbors for example. I can't think of the words I want to say when having conversations. I can be looking right at a simple object and unable to think of what it's called. About five years ago or so, I saw someone in a store one day who was a previous neighbor of mine. Our kids who were grown had played together when they were kids. She looked the same, but I did not remember her. It's crazy and scary. I'm having to write everything down these days b/c I know I won't remember. For example, my boyfriend reminded me tonight for the second time that he is going out of town this weekend. I totally forgot. I came home and wrote it on my calendar. My memory is ridiculous these days. I'm lucky I remembered to write it on my calendar.
 
Music36 said:
I can't think of the words I want to say when having conversations. I can be looking right at a simple object and unable to think of what it's called.
Click to expand...

This happens to me all the time! I'm horrible when it comes to words. I was having problems with my refrigerator once and I called to find out what might be wrong and if I needed someone to come fix it. While I was talking to the person on the phone I couldn't think of the word refrigerator!
 
Valerie,

I struggle to come up with words everyday. It's frustrating not being able to think of what I want to say. I often have to describe b/c I can't think of the word(s). Sometimes, I have to say wait a minute why I form a sentence in my head. I, probably, appear to not be very intelligent to people who don't know about my medical condition or maybe they think I'm on drugs. I don't know. But, I'm an intelligent person who has a Master's degree and I was in advanced classes when I was growing up.
 
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I just love the looks that I'll get from people when I'm trying to think of the most simple world. :? It's like a guessing game - me trying to describe it and them trying to figure out what it is.

Google is the best thing in the world! You wouldn't believe how many times I've had to look up words on there by describing them just so I can post it on here!
 
An update to the original part of my post. I already got the date for my EEG which is a couple of weeks away. A double length sleep deprived video EEG. I have to stay all night and report to the hospital first thing in the morning. I also got my appointment for 3T MRI which is just over a month away. The EEG is two hours long. I dont recall having that long before.I'm still waiting for the neuropsychological accessment appointment.

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gnault,

In the U.S., a video EEG often lasts 3-5 days. I was in the hospital for 4 days when I had my video EEG. They sleep deprived me two nights in a row and decreased one of my meds. No seizures in the first couple of days, so then they took me completely off that med. Third day, came the seizures.
 
Valerie,

I know exactly what you mean. It's the same way for me. Some days are worse than others. Today, I had so much trouble coming up with words when having conversations. I had to describe things all day long b/c I could not think of the word(s). Sometimes, it can feel exhausting to have a conversation.
 
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My family doctor told me today that my neurologist said some of my issues, cognative and memory, could be depression or sleep apnea related. I guess we'll see what the neuropsych test says.

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My family doctor also said that another one of her patients, 12 yrs od, that was recently diagosed with epilepsy. He was put lamotrige and about a month later his month said his short term memory is really bad. The neurologist didn't think there was a link between the two.

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