Lotte
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I saw the neuro on Monday, who was very forthright which I prefer...
But, he told me that my seizures are non-epileptic because I have PTSD and in June I stopped self harming (my coping mechanism) he said this is why I am having seizures...the seizures started in January before I stopped the self harm.
So, because I am not self harming (his opinion) my body no longer has the outlet for the emotional distress the PTSD causes hence the seizures.
He said I needed CBT, but not in my town, in London at the Maudsley. Which I refused because I have already discharged myself from the MH team as in my case they have made things a lot worse over the last six years.
This might sound like complete madness, but I would rather start the self harm again than be sent to a mental hospital. I feel like they blame everything on my childhood. I can accept that these are emotional seizures, absolutely but I am not entering the psychiatric world again. No way.
He said my abnormal brainwaves on the EEG were nothing to worry about, that sometimes it's normal to have normal brainwaves.
I get the 'aura' before seizures which he said were me disassociating, and I feel terrible for 48+ physically after a seizure.
I am so confused. I give up and if the only thing that will stop the seizures is self harm then I feel that is my only option, I'd rather that than CBT.
I am waiting for my Nephrology results next Thursday, if they say my body is producing urea and all the kidney symptoms are down to my PTSD then I truly give up. I feel it is their 'get out clause' once they see my MH records.
Sorry for the depressing post and starting a new thread I wasn't sure what to do.
But, he told me that my seizures are non-epileptic because I have PTSD and in June I stopped self harming (my coping mechanism) he said this is why I am having seizures...the seizures started in January before I stopped the self harm.
So, because I am not self harming (his opinion) my body no longer has the outlet for the emotional distress the PTSD causes hence the seizures.
He said I needed CBT, but not in my town, in London at the Maudsley. Which I refused because I have already discharged myself from the MH team as in my case they have made things a lot worse over the last six years.
This might sound like complete madness, but I would rather start the self harm again than be sent to a mental hospital. I feel like they blame everything on my childhood. I can accept that these are emotional seizures, absolutely but I am not entering the psychiatric world again. No way.
He said my abnormal brainwaves on the EEG were nothing to worry about, that sometimes it's normal to have normal brainwaves.
I get the 'aura' before seizures which he said were me disassociating, and I feel terrible for 48+ physically after a seizure.
I am so confused. I give up and if the only thing that will stop the seizures is self harm then I feel that is my only option, I'd rather that than CBT.
I am waiting for my Nephrology results next Thursday, if they say my body is producing urea and all the kidney symptoms are down to my PTSD then I truly give up. I feel it is their 'get out clause' once they see my MH records.
Sorry for the depressing post and starting a new thread I wasn't sure what to do.