slayersophie
New
- Messages
- 15
- Reaction score
- 0
- Points
- 0
*phew* Am I glad I found you! I feel like I am boring those around me with my constant talking about how I feel about this new diagnosis of epilepsy! I am sure this isnt the case,I am surrounded by constant support and love but none the less its how I feel. I feel alone although I am surrounded. simply because I feel that no one can truely understand no matter how much they try to. How wonderful to have a community of people who will understand. I am 29 years old and had my first grand mal on Dec.22. I went to the e.r. but i already knew what happened to me as soon as I came to and realized that my tongue was bitten. I work with adults with disabilities. (autism, Downs syndrome, etc.) and seizures are often seen. I knew what happened but I couldnt grasp the idea that it happened to me. The confirmation that it was a tonic clonic, shocked me of course, but it didnt upset me in the way it did those who love me. I believe this is because I have been educated,trained, and exposed to seizures whereas this is their first experience.I completely understand their view. I remember the first seizure I ever saw and it impacted me greatly.
I went to the neurologist and discussed the seizure. There werent any witnesses. My Dad found me on the floor unconcious. The seizure was over and I was just laying on the floor passed out, probably sleeping. However, that post ictal phase is awful! I explained to my doctor my "aura" and how I felt after my seizure. Then i told her about other strange things I was experiencing for a few months before the tonic clonic. Turns out those were partial seizures. I was shocked and couldnt believe what I heard. She ordered an EEG and gave me a prescription for Keppra and told me to start them the next day. On the way home I had another aura but couldnt tell my boyfriend what was about to happen and I had another grand mal. Needless to say, it scared him pretty badly. However, he remembered the things I told him to do and he acted perfectly. It lasted 4 minutes and he did call an ambulance. Long story short, here I am. I had my MRI today and my neurologist called me a few hours later and said my brain looks "phenominal". Looks like we are going to have to look into this a little further to try and see why this is happening. I know most people with epilepsy never find out why and I am okay with that. Personally, I would rather have the cause be unknown than have a tumor or an infection. ;P
I do have a lot of questions and thats just a part of it. I have been writing my symptoms down and keeping track of everything as best as I can. I hope this will help answer some of my questions that I have for my Doctor when I go back for my next appointment. I am very grateful for this forum. I look forward to learning from and helping along side people who understand. :banana:
Amy
I went to the neurologist and discussed the seizure. There werent any witnesses. My Dad found me on the floor unconcious. The seizure was over and I was just laying on the floor passed out, probably sleeping. However, that post ictal phase is awful! I explained to my doctor my "aura" and how I felt after my seizure. Then i told her about other strange things I was experiencing for a few months before the tonic clonic. Turns out those were partial seizures. I was shocked and couldnt believe what I heard. She ordered an EEG and gave me a prescription for Keppra and told me to start them the next day. On the way home I had another aura but couldnt tell my boyfriend what was about to happen and I had another grand mal. Needless to say, it scared him pretty badly. However, he remembered the things I told him to do and he acted perfectly. It lasted 4 minutes and he did call an ambulance. Long story short, here I am. I had my MRI today and my neurologist called me a few hours later and said my brain looks "phenominal". Looks like we are going to have to look into this a little further to try and see why this is happening. I know most people with epilepsy never find out why and I am okay with that. Personally, I would rather have the cause be unknown than have a tumor or an infection. ;P
I do have a lot of questions and thats just a part of it. I have been writing my symptoms down and keeping track of everything as best as I can. I hope this will help answer some of my questions that I have for my Doctor when I go back for my next appointment. I am very grateful for this forum. I look forward to learning from and helping along side people who understand. :banana:
Amy
