new here

  1. M

    New Here

    Hello everyone, I just joined this community and thought I'd introduce myself. My name is Zee, I have epilepsy which has been managed and controlled for the past 8 since I've been diagnosed and been put on Lamotrigine. I do often get random waves of just general pre-seizure feelings but they...
  2. Karen

    Hi. I'm new here.

    Hi. I'm new here and new to using boards. So I'm a little "unsteady on my feet" but I was inspired by the things I've read here and thought it would be a nice place to visit. I've had infrequent seizures since my first seizure at age 21 (30 yrs ago :eek:) usually years apart tho some were...
  3. F

    New here and new to seizures

    Hi! My son just started having seizures the end of July. He was in Haiti on a mission trip. We are still in the process of testing and discovery. So far, no real answers. I am sad, but enlightened to learn that this is common. He has had lab studies, CAT scan and MRI. He had recent labs...
  4. T

    Just saying hey!

    Hi there community! :hello: Here's how my story goes: I'm 18 and I've been recently diagnosed (recently as in.. two days ago) with JME. I was hospitalized after a grand mal seizure (hopefully the only one I'll ever have), but had myoclonic jerks for about two years now (I didn't pay much...
  5. M

    hello everyone

    Hi. I am new to this place. I want to get to know other people with epilepsy. Just for a background, I was diagnosed with epilepsy in November of 2011. I was so scared about everything that I stayed home all the time. I've had countless grand mals, petite mals, partial, and silent seizures. I...
  6. N

    Help- I don't know if i'm having seizures

    Hey, last saturday I was at a house party, had a little to drink (about 3 half glasses of beer) and the had 3 tonic clonic seizures. A neurologist said that I may just have been allergic to the alcohol as I'd never actually had beer before and my CT scan came back normal. But today I just...
  7. Intothatendlessblue

    Hello!

    Hello Everyone! I can't begin to say how excited I am to find this site. I am 25 years old and I was diagnosed with Epilepsy in July 2012. I'm new to the whole thing and to be frank I'm scared out of my mind. I don't know anyone else who has Epilepsy. I'm sorry if I come off a bit mopey, I'm...
  8. M

    Dangerous and Strange things I do after seizures

    Hi there, I'm new here I've had epilepsy for 14 years now but over the past 2 years the seizures have gotten really out of hand. It used to be so long as I took my medication everything was fine but now not so much and I've started getting tonic clonic seizures one after another last week I...
  9. M

    Newbie, Dau (4) has ep, considering GARD

    Hello everyone! My 4 yo dau has been seizing for about 2 years now and is worsening. Can't get into the doc again until October, apparently the only other clinics in MO have stopped taking patients so they're all being funneled to her doc's office. So since I can't talk to him about her...
  10. S

    new and optimistic.

    *phew* Am I glad I found you! I feel like I am boring those around me with my constant talking about how I feel about this new diagnosis of epilepsy! I am sure this isnt the case,I am surrounded by constant support and love but none the less its how I feel. I feel alone although I am surrounded...
  11. claudi

    Hello!! I am new :)

    Hello everyone! I am here to hopefully find support and offer it as well :) I have had focal seizures for as long as I can remember. I had my first tonic-clonic at the age of 25 and had my 6th one 3 days ago (I am now 37). I bit the he** out my tongue ***bonus*** I have lost 3 pounds...
  12. P

    Hello, I'm new here

    Hi I'm new to this forum. I was diagnosed with epilepsy at 15. I just wanted to talk with someone like me-someone who understands what it's like to live with epilepsy. How do others cope with this? I'd like some support. Thanks
Top