Newbie, Dau (4) has ep, considering GARD

[mamarancher]

Hello everyone! My 4 yo dau has been seizing for about 2 years now and is worsening. Can't get into the doc again until October, apparently the only other clinics in MO have stopped taking patients so they're all being funneled to her doc's office.

So since I can't talk to him about her worsening symptoms, I've been seeing what we can do here at home. We're considering the GARD diet and just curious what results others have had.

We have been hoping she'd outgrow this, but instead it gets worse. It feels strange having her tell strangers about all the stuff she gets from the children's hospital and about being "hooked up". It's strangely comforting to find a community of people that have gone through it all too.

 

[Kaitybugsmom]

Hello everyone! My 4 yo dau has been seizing for about 2 years now and is worsening. Can't get into the doc again until October, apparently the only other clinics in MO have stopped taking patients so they're all being funneled to her doc's office.

So since I can't talk to him about her worsening symptoms, I've been seeing what we can do here at home. We're considering the GARD diet and just curious what results others have had.

We have been hoping she'd outgrow this, but instead it gets worse. It feels strange having her tell strangers about all the stuff she gets from the children's hospital and about being "hooked up". It's strangely comforting to find a community of people that have gone through it all too.

Hi Mamarancher,

October is such a long way away...they wont do a phone consult type thing? I am sorry that your daughters seizures are getting worse. I was going to link some posts about the diets from the this site but alas I have forgotten how to do that. I think if you go to the kitchen there is a place about diets and there is a tone of good info.

Good luck, and I hope you can at least talk to somebody at the Dr's. office even if you cant see them.

 

[Nakamova]

Hi mamarancher, welcome to CWE!

Here are the links mentioned above, hope they help.
http://www.coping-with-epilepsy.com/index.php?p=glutimate-aspartate-gard
http://www.coping-with-epilepsy.com/index.php?p=low-glycemic-index-diet
http://www.coping-with-epilepsy.com/index.php?p=modified-atkins-diet

We also have this sub-forum about diets, that you might want to explore: http://www.coping-with-epilepsy.com/forums/f39/

Best,
Nakamova

 

[dark angel :-(]

Why until oct.

 

[RobinN]

mamarancher - I highly recommend you consider it. Perfect timing to see if nutritional changes might help, before chemicals are introduced into her system. Your child has to eat, it only means that you are working with a healing diet. What do you have to lose?

It is not harmful in any way.