Hi. I'm a 28 year old female recently diagnosed with tle.
I've finally found out that I'm not psychic, insane or bi-polar
I've simply had a good case of simple partials for as long as I can remember. They really are good as well. I think I could almost count the ones that made me feel really bad and anxious on one hand. It's very nice to be able to put a name to it. I really really don't mind the little ones.
The problem started when for some strange reason my brain went a little more haywire and I had 2 generalised tonic clonic seizures within 3 days of each other. I was on a bus on the way to company outing when the first one happened, so pretty much every single person in our entire office building saw me have the fit. Go big or go home right :taz: One of my co-workers let out an extremely girly scream when I went into the seizure (he's still living that one down) and made the poor bus driver think he hit someone.
The medical centre I was dropped off at kept me there for 4 hours and concluded that the seizure was caused by a drop in my blood pressure. I was prescriped several vitamins and told to go to my own GP if it ever happened again. I couldn't believe how guilty they made me feel about having something that was completely out of my control.
Fast forward to the next one, I was at a training session staring at a screen and listening to this woman drone on about something, wishing I could be anywhere but there when all of a suddeb I woke up on the floor. Be careful what you wish for I was taken to a different medical centre this time, and gosh, what a change in the service levels.
The neurologist on call did bloodtests, MRI, EEG, EKG... I lost count. Apparantly my right temporal lobe is the cause of the problem. No idea why though. The doc took quite a lot of time to go through the EEG with me. Apparantly there was quite a bit of abnormal activity going on in there when they were doing the test.
He has me on Topamax, just increased the dosage to 75mg, So far so good. The little seizures are still coming through, but that's all good. I can go the rest of my life without another one of those big ones. Apparantly goal is at least 200mg. I have to say I'm not too happy about that. I hate taking medication!! I don't even like taking aspirin for headaches
I've had some bad side effects, but tonight I feel absolutely great. No dizziness, mindfog or memory problems. I'm hoping it's a case of adjusting to the dosages...
Okey dokey. I think I've waffled on long enough. Thanks for reading
If you just skipped right to the end just so you could post a welcome note, I don't blame you. I promise to try and keep it short in future....
I've finally found out that I'm not psychic, insane or bi-polar
I've simply had a good case of simple partials for as long as I can remember. They really are good as well. I think I could almost count the ones that made me feel really bad and anxious on one hand. It's very nice to be able to put a name to it. I really really don't mind the little ones. The problem started when for some strange reason my brain went a little more haywire and I had 2 generalised tonic clonic seizures within 3 days of each other. I was on a bus on the way to company outing when the first one happened, so pretty much every single person in our entire office building saw me have the fit. Go big or go home right :taz: One of my co-workers let out an extremely girly scream when I went into the seizure (he's still living that one down) and made the poor bus driver think he hit someone.
The medical centre I was dropped off at kept me there for 4 hours and concluded that the seizure was caused by a drop in my blood pressure. I was prescriped several vitamins and told to go to my own GP if it ever happened again. I couldn't believe how guilty they made me feel about having something that was completely out of my control.
Fast forward to the next one, I was at a training session staring at a screen and listening to this woman drone on about something, wishing I could be anywhere but there when all of a suddeb I woke up on the floor. Be careful what you wish for
I was taken to a different medical centre this time, and gosh, what a change in the service levels. The neurologist on call did bloodtests, MRI, EEG, EKG... I lost count. Apparantly my right temporal lobe is the cause of the problem. No idea why though. The doc took quite a lot of time to go through the EEG with me. Apparantly there was quite a bit of abnormal activity going on in there when they were doing the test.
He has me on Topamax, just increased the dosage to 75mg, So far so good. The little seizures are still coming through, but that's all good. I can go the rest of my life without another one of those big ones. Apparantly goal is at least 200mg. I have to say I'm not too happy about that. I hate taking medication!! I don't even like taking aspirin for headaches
I've had some bad side effects, but tonight I feel absolutely great. No dizziness, mindfog or memory problems. I'm hoping it's a case of adjusting to the dosages...Okey dokey. I think I've waffled on long enough. Thanks for reading
If you just skipped right to the end just so you could post a welcome note, I don't blame you. I promise to try and keep it short in future....
op:
