Hi! My 13 year old son had his 1st tonic clonic seizure on Dec 26, 2009, it was truly the scariest thing I've ever experienced. We have no family history on either mine or my husbands side of the family, there was no head injury or illness, he is a very healthy kid, he wrestles and plays football. He had an EEG that showed generalized seizure activity. Neurologist put him on levetiracetam 500mg 2x per day. Second seizure was Feb 24, 2010 after a wrestling tournament. It was his worst fear....a seizure in front of his friends. At that time came his "official" epilepsy diagnosis. His meds were changed to name brand Keppra XR 750mg 2x per day. This is where I get real nervous. The doc had given us a RX discount card since we were switching to name brand, the pharmacy said it couldn't be used because the drug company doesn't recommend kids under 16 years old using XR formula. I called the doc to make sure the XR was correct and told yes that's what he wanted. I'm still uneasy about the XR and 2x per day dosage, but so far so good. I've ready tons of posts and haven't seen anything relating to the Keppra XR so I thought is was time I came from the lurking world to ask the questions. Has anyone had any experience with the XR or heard of it being given twice per day? I have 100% confidence in the neurologist, but don't want to overmedicate. Thanks!
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