Hi all. I was diagnosed just over a year and a half ago with simple partial seizures. I had been having them for about 2 years before mentioning my "funny turns" to the doctor.
I was really shaken by being told I had epilepsy - basically because my understanding of it was so limited, and I'm ashamed to admit that I was also upset at having something/a label.
I have since got over that and have been back driving again from last October. That really helped me feel more upbeat as I hated not being able to drive after having done so for over 20 years!
Unfortunately I have recently started to have new, odd sensations that I am really worried about. I'm not sure if they are to do with my epilepsy or not as I can't find any info that points to it directly - but I am probably lying to myself about this as I'm so scared of not being "fixed" and (stupidly) of losing my driving licence again. There is also an irrational fear that during my initial scans/diagnosis they missed something which has now got worse i.e. a tumour.
I guess I joined is because I feel the need to reach out, but I'm not ready to go back to my epilepsy specialist and all that that might start.
I was really shaken by being told I had epilepsy - basically because my understanding of it was so limited, and I'm ashamed to admit that I was also upset at having something/a label.
I have since got over that and have been back driving again from last October. That really helped me feel more upbeat as I hated not being able to drive after having done so for over 20 years!
Unfortunately I have recently started to have new, odd sensations that I am really worried about. I'm not sure if they are to do with my epilepsy or not as I can't find any info that points to it directly - but I am probably lying to myself about this as I'm so scared of not being "fixed" and (stupidly) of losing my driving licence again. There is also an irrational fear that during my initial scans/diagnosis they missed something which has now got worse i.e. a tumour.
I guess I joined is because I feel the need to reach out, but I'm not ready to go back to my epilepsy specialist and all that that might start.