Hi, my name is Mary. My son has been diagnosed with temporal lobe epilepsy one year ago. So far we have tried Trileptal (severe allergic reaction), Depakode and Keppra. We had to stop Keppra due to side effects and he is stil on Depakode but it is not working anymore. In the mean time his epilepsy has become worst,he can barely function, is not able to attend school and he is always very tired. A short EEG showed continous epileptic activity while he was asleep, which could be why he is always tired. He also has 4-5 seizures a day, he will stare in the empty space, freeze and not understand where he is when he gets out, very confused and scared. He is going to start on Vimpat now, has anyone experience with that? Also, has anyone any experience on testing on a possible autoimmune disorder as the cause of epilepsy? It seems that this a new research field (10 yrs or so) but quite promising for those forms that seem to come from no where (clean MRI).
I am looking forward to any of your comments, it can be quite lonely to care for somebody with epilepsy and not completely easy to find the needed support.
I am looking forward to any of your comments, it can be quite lonely to care for somebody with epilepsy and not completely easy to find the needed support.