New with seizures and lightheaded

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joliver10041

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I've been diagnosed with a 'seizure disorder' and I'm on dilantin. I was never told what kind of seizures I have but the only one my neuro ever said was absence and complex partial. I was informed by my regular doctor that if my dilantin levels get too high I could have a grand mal and lately my seizures have been coming often and now are to the pout where I fall down, today I have had the worst lightheaded ness feeling and have just lost my balance a few times today, I was wondering if this is a sign of it worsening due to higher dilantin levels or what I should do. I'm 21 and they just started happening randomly in June, so I'm still new to them and it worries me.
Help?
Jordan
 
Hi, Jordan - welcome!
Have you told your neurologist that the seizures are becoming worse? That is the important first step to take. It is possible that your loss of balance is not seizure-related but that you are experiencing side effects from the dilantin. Perhaps the dose is to high. There are a lot of other seizure medications out there, and maybe dilantin is not the best one for you. Everyone responds differently to different medications.
 
Thank you(: I have told him but they haven't gotten back to me, I've been on the medication for about 2 months and my regular doctor warned me if my levels are too high I can have a grand mal, so I was just worried about the lightheaded ness lead to one, thank you for replying
 
Seizure if they're too HIGH? Never heard that one & I was on that stuff about 15 years.
Interesting. I know that stuff caused mega coordination/balance issues for me.
 
She said because I'm so young if the dilantin levels are too high I can, and I've had a few people my sister who is a nurse and a few others say that it will happen
 
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