Night sweats, headaches and triggers

[jenagade]

I'm still figuring out what my triggers are and how my body reacts to seizures and AEDs so I have heaps of questions but my top three are:

- Does anyone find they regularly wake up drenched in sweat? I find that despite being really sweaty I'm always freezing cold when it happens.

- How long do headaches after seizures typically last? I've had ones that seem to linger for days.

- I'm still learning about my triggers but I have noticed that sometimes when I'm somewhere really noisy it builds up intensity til I suddenly can't hear anything and then have a seizure. The only way I can describe it is a complete sensory overload which sends me into a reboot. Is it possible to be triggered by noise?

 

[walkerjm3]

I sweat a lot at night. Especially around my neck. Sometimes my shirt collar is soaked. As for headaches, I have one daily. I can sometimes tell which are from a seizure and which are from the head injury.
You may be noise sensitive with yours. What type of seizures do you have?

 

[jenagade]

I have absence and complex partial seizures. I find the sweating is most noticeable around my neck as well.

 

[walkerjm3]

Do you know which lobe they start from?

 

[jenagade]

They are temporal lobe

 

[valeriedl]

- Does anyone find they regularly wake up drenched in sweat? I find that despite being really sweaty I'm always freezing cold when it happens.

About a year a go I started waking up drenched in sweat. I really didn't realize it until the others said it was around their neck because I'm usually soaked there and around my sholders. I don't know if I'm cold during it though or not. I used to be able to sleep with two down comforters, two heavy blankets, a sheet and flannel pjs on but not any more. I've only got a sheet over me and I'm almost naked in bed.

My husband said that I might be going through early menopause, really don't know it that happens then. I'm seeing my neuro next week and gyno the end of next month so I'm going to ask both.

-
- How long do headaches after seizures typically last? I've had ones that seem to linger for days.

Mine will be there for hours. I don't think I've had one go into the next day but I know there are others on here who have.

- I'm still learning about my triggers but I have noticed that sometimes when I'm somewhere really noisy it builds up intensity til I suddenly can't hear anything and then have a seizure. The only way I can describe it is a complete sensory overload which sends me into a reboot. Is it possible to be triggered by noise?

I don't think noise has ever triggered a seizure for me because I go to a good bit of concerts and they are pretty noisy. But that's just me, everyone's different. It's usually stress, lack of sleep and if I'm very upset about something that sets them off. Other's can just come out of nowhere.

 

[jenagade]

Another thing I was going to ask about I have these times where someone is talking to me, and I know they are speaking and I can hear them perfectly fine but its almost like I haven't registered anything they've said, and usually when that happens it coincides with not being able to remember what I'm saying while I'm speaking or going to say something but the wrong word comes out. Has anyone else experienced that before? I'd say it happens at least once a day and its probably one of the more concerning things I've noticed

 

[BIGMAN131307]

Does anyone find they regularly wake up drenched in sweat? I find that despite being really sweaty I'm always freezing cold when it happens.

There was a time when I did. But the weird thing it was happening in the middle of winter. It most likely was a AED side effect. Which one, I have no clue. I've changed AEDs many times over the years.

How long do headaches after seizures typically last? I've had ones that seem to linger for days.

For me my "bad" headaches after a CPS would last at least 24 hours. I typically have a headache everyday. But I'm hoping that will go
away once I'm completely healed from surgery.

I'm still learning about my triggers but I have noticed that sometimes when I'm somewhere really noisy it builds up intensity til I suddenly can't hear anything and then have a seizure. The only way I can describe it is a complete sensory overload which sends me into a reboot. Is it possible to be triggered by noise?

Yes, it is very possible. There are people who have seizures triggered my music. I believe I also had a similar trigger when I was in college. I would have a CPS seizure in the same class almost every time I was there. It seemed to happen when the professor lectured too
much. Something about his voice seemed to bring it on. All I know for sure it didn't happen during any other class.


Try to keep a daily log activities, foods, places, etc. This way to can track any possible triggers. Hopefully you wont have too many triggers.

 

[jenagade]

There was a time when I did. But the weird thing it was happening in the middle of winter.

That's why I noticed it so.much, we're in the middle of winter here and I am always freezing at night but wake up drenched.

For me my "bad" headaches after a CPS would last at least 24 hours. I typically have a headache everyday. But I'm hoping that will go
away once I'm completely healed from surgery.

I find I get the really intense headaches from the less severe CPS, but won't get a headache at all from more severe ones. Though at the moment it feels like I just have one constant headache.

Try to keep a daily log activities, foods, places, etc. This way to can track any possible triggers. Hopefully you wont have too many triggers.

That's a good idea, I keep track of the seizures themselves but not what's happening around me when I have one

 

[Bernard]

...
- Does anyone find they regularly wake up drenched in sweat? I find that despite being really sweaty I'm always freezing cold when it happens.
...

Check this out: http://www.coping-with-epilepsy.com/forums/f23/night-sweats-sleep-apnea-799/

 

[Nakamova]

jenegade,

-- Are you on any anti-seizure medication? I found that when I first went on Dilantin it made me sweat quite a bit at night.

-- With headaches everyone responds differently -- it's a bit like hangover remedies. Do your headaches respond to pain relievers? You might have to try a few different things to see what works. Ordinarily I'm an ibuprofen person, but Tylenol seems to work better with certain headaches. Another thing that can help is making sure you are eating and getting enough water in the days following a seizure.

-- Noise does trigger seizures in some folks. There may be other factors that are contributing -- things like fluorescent lights or stress on one sort or another. As mentioned above, keeping a journal might help you identify triggers so that you can hopefully avoid them.

 

[bighealey]

I don't know if this helps but I was waking up drenched so bad we began using terry cloth blankets below and above me. It is not so bad now but I do sweat when I sleep. My wife is going through menopause so she sweats but always when awake and always associated with a hot flash. It cannot be my meds because they were worse before I went on these meds. Peace

 

[jenagade]

jenegade,

-- Are you on any anti-seizure medication? I found that when I first went on Dilantin it made me sweat quite a bit at night.

I'm currently transitioning over from Tegratol to Lamactil, but I've found that the sweating happens when I'm not on stable medication, when the Tegretol was still working I didn't have night sweats.

I have found in the past that I've gotten the sweats from anti-depressants, however that was 24/7 not just at night.

 

[jenagade]

I don't know if this helps but I was waking up drenched so bad we began using terry cloth blankets below and above me. It is not so bad now but I do sweat when I sleep. My wife is going through menopause so she sweats but always when awake and always associated with a hot flash. It cannot be my meds because they were worse before I went on these meds. Peace

Thats a good idea thanks. I've taken to keeping a towel by the bed and use it if I get too drenched.

 

[jenagade]

Check this out:

Thanks Bernard, thats a bit scary but I will definitely be letting my neurologist know whats going on at my next visit because I tend to attribute a lot of things like the sweats, fatigue, disorientation etc either to the medication or to the epilepsy in general