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A new friend and I went to a concert last night. She knew I had epilepsy and I let her know that lights have never bothered me. She asked me if I had any sort of triggers and I told her I didn't. She seemed to know a good abut about the different types of seizures there are too.
"I need to grab your tongue so you don't swallow it don't I", she asked. I started to laugh because I though she was joking but when I looked over I saw she was dead serious! I told her I cannot swallow my tongue and she was really surprised because people had told her that a person can while they are having a seizure. I told her not to put anything in my mouth or hold me down if I had a seizure. I showed her my VNS and how to use it. I let her know that she just needed to make sure I don't hurt myself during the seizure, and if she needed to then get someone who works there to help.
I know that there are so many myths, if that's what this one is considered, about epilepsy. I just never thought that she'd ask me, or anyone would, that!
"I need to grab your tongue so you don't swallow it don't I", she asked. I started to laugh because I though she was joking but when I looked over I saw she was dead serious! I told her I cannot swallow my tongue and she was really surprised because people had told her that a person can while they are having a seizure. I told her not to put anything in my mouth or hold me down if I had a seizure. I showed her my VNS and how to use it. I let her know that she just needed to make sure I don't hurt myself during the seizure, and if she needed to then get someone who works there to help.
I know that there are so many myths, if that's what this one is considered, about epilepsy. I just never thought that she'd ask me, or anyone would, that!