No seizures for over a year, and life is good!

[darcness]

I know I haven't been around here on CWE much lately, but life's been so busy I haven't had much time to do anything online other then keep up with my "side business" with my Volkswagen forum.

Time has gone by pretty fast and I'm in a much better place then I was when I first came here to CWE. Back then I was scared, frustrated, and clueless about E. I've since learned so much from the wonderful people here and managed to pull my life back together. For those of you who don't know me, my wife was diagnosed with E last March after 3 T-C's in 1.5 years. I then had a nervous breakdown and lots of hard times. But in time, I've really managed to learn to cope, help my wife, and deal with all that E can bring.

Tera has been well, taking Keppra still. She hasn't had a known seizure or any seizure activity in over a year now. She's driving on the regular again and soon will be looking to get back to working. Her depression has been much better and we've been doing really well with our still new marriage.

We took a trip to the Bahamas a few weeks ago. We went on a Royal Caribbean cruise and it was amazing. It was a great reminder that she's still the girl I fell in love with 11 years ago and we can still have a great time together. I think we both really needed it. I still get worried from time to time and think "why me, why her?" Then my head wants to explode and not turn off. Just getting out and having time to ourselves and on such a beautiful vacation was perfect.

I'm still not 100% past all of this, as there are still times I hear a noise and think, could it be? However I'm in a place now were I can move on and be happy again. Truly happy like I was before all of this.

I guess I just wanted to share my story and hope with all of you. I wish you all well and thanks so much for all the support and wonderful people here on CWE!

You all rock! :rock:

 

[Endless]

Congratulations! It's so wonderful your wife has been seizure free for over a year!

It really helps to read the success stories on here. It shows me that there is definitely hope for the future.

 

[darcness]

There really is hope. Lot's of it too. Sometimes it's just too hard to see behind all the other baggage that E brings along. E doesn't travel light, that's for sure!

 

[aaron2209]

Hi darcness,
So glad to read your story. It sounds like I and my girlfriend are where you and your wife were all that time ago. Gives me hope that this isn't the end of the world. So know what you mean about hearing a noise and thinking "could it be", lost lots of sleep over that. My girlfriend and I are still new to it all and she is still struggling to accept she has it. I can only hope that in the not too distant future we can be happy and sorted like you guys are!

Cheers

 

[KelVarQ]

Darcness you story was like a breath of fresh air! GOOD FOR YOU and don't forget to give yourself a pat on the back as well. I'm so happy to hear about your wife and how well she's doing. I'm lucky too since I have a husband who's very understanding and knows my E better than myself and any doctor out there. But the truth is Darcness it's not always easy for us either, those with the E, when it comes to our mates because we too feel the guilt of being the per se' burden and sometimes guilt can manifest into anger and ultimately lack of communication. I'm so HAPPY to hear you're both doing so well. Loved reading your story and wishing you both the best!

 

[Meetz1064]

Ohh, Darcnesss

I was just thinking about you and Tera the other day. And wondering how things were going. I was actually thinking of sending you a PM when I noticed this thread up on the board........

This is so cool, and I am sooooo happy for the both of you. :bigsmile: I really am. Getting your life back to something that can RESEMBLE normal is sooooo very important.

I wish you both of you the best in everything. And please, don't forget us here. Tell Tera we said hi.

Hugs,

Meetz
:rock:

 

[dfwtexas]

That is GREAT news! It helps to know there is hope.

 

[alivenwell]

Darcness, it's great to hear you're doing so well. Vacations like that can really give a different perspective. Hopefully everything will continue on that path. I agree. Sometimes it seems so surreal.

 

[Zoofemme]

Congratualtions on a year free...what a fantastic blessing

 

[darcness]

All the kind words are really too much. I'll be sure to tell Tera that everyone said hello, especially you Meetz!

I'll keep you all updated from time to time and I still check on CWE every so often to see how those I know are doing. I'll do my best not to be a stranger, and again, from the bottom of my heart, thank you all so much.