nothing left to try w/ur refractory

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Belinda5000

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Hello everyone,
I've tried everything brain surgery,VNS,I'm allergic 6 meds a lot of them just don't work for me.I'm med resistant to one entire class of drugs Tegretol.
I can take the original Tegretol but nothing else in the family.

What do u do when you've tried everything? I'm on mt 22nd AED.
I couldn't take new one Potiga because of my heart.

any suggestions?:twocents:


Belinda
 
Hello everyone,
I've tried everything brain surgery,VNS,I'm allergic 6 meds a lot of them just don't work for me.I'm med resistant to one entire class of drugs Tegretol.
I can take the original Tegretol but nothing else in the family.

What do u do when you've tried everything? I'm on mt 22nd AED.
I couldn't take new one Potiga because of my heart.

any suggestions?

You come here and ask for suggestions? You've got to be kidding, right?
I, too, had a failed brain surgery, I've only tried 11 meds, and am now on my 3rd VNS battery. I have refractory E and the only thing I can do is keep going back to my epileptologist and ask what is the latest thing on the market that I could try. Maybe, just maybe, this one would work.
 
You come here and ask for suggestions? You've got to be kidding, right?
I, too, had a failed brain surgery, I've only tried 11 meds, and am now on my 3rd VNS battery. I have refractory E and the only thing I can do is keep going back to my epileptologist and ask what is the latest thing on the market that I could try. Maybe, just maybe, this one would work.
I HAD the VNS battery replaced 3 times.My neuro has me on some old drugs.
Eventually my seizures will start back up they always do.
I'm tired of busting my head open.
 
And

what about trying one of the diets, like the GARD, or Modified Atkins???
 
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