i have temporal lobe epilepsy (discovered last year in one region slightly by EEG) but recently discovered on another EEG when I was having seizures at the time (was taken to a top notch neuro to capture this who was considering hospitalizing me due to being left in the ER for hours the night before having constant simple partials...unfortunatly I was so distressed and the the environment making it worse i left and in a way it was good because I found my current neurol) and showed it on both sides and slightly in the frontal lobe region (must have been moving slightly towards that)
BTW the reason I finally left...perhaps mentioned on another post, was due to a lady running in whose husband was outside in a wheel chair having a heart attack and both security and nurses at the desk said it was not their job to help him in....after which 2 other nurses laughed. Extremly distressing, county hospital, I did not want to put my life in the hands of such disgraceful people
Anyway, working on getting it fully in control, not had any complex seizures for a while, just some simple partial ones. Unfortunatly I feel its progressed a little, but Im confidant im just around the corner from being seizure free.
Anyway what I have noticed....is actually very bizarre but after talking w ith my neuro over the phone the other night and explaining she said it didnt sound strange to her at all, but probbaly would to nearly all neurologists (she specialises in epilepsy)
So these triggers.... following multiple conversations with a group of people around me...(not sure if its conversations or perhaps alot going on around me visually) When Im deep in thought (i often spend time alone thinking about theology and philosophy) i tend to start to feel strange.
I am terrible with organizing my finances and keeping track of them (perhaps a little ADD) but when I start calculating what is going on and keeping a budget or often trying to figure out how to not be overdrawn or balancing check book) .. it totally sets me off. I find it extremly hard to just...figure it out..
Card game a few nights ago.... set it off very bad. Also noticed...seeing the psychatrist and therapist, where we discuss dificult things and I get asked alot of questions which I find hard to understand and need them repeated... sets it off... (maybe this is just stress though) but what accounts to the other stuff setting me off is indeed strange to me I have to ask for silence for 5 minutes .. which is frustrating.. but I just need the silence and no stimulation at all
If I am in an aura (tingling prickling and sinking feeling dazing a bit) and someone touches my affected area that jerks ... it sets it off and I just jump
Realize this thread is a little jumpy but hopefully you can understand and make some sense of it lol
BTW the reason I finally left...perhaps mentioned on another post, was due to a lady running in whose husband was outside in a wheel chair having a heart attack and both security and nurses at the desk said it was not their job to help him in....after which 2 other nurses laughed. Extremly distressing, county hospital, I did not want to put my life in the hands of such disgraceful people
Anyway, working on getting it fully in control, not had any complex seizures for a while, just some simple partial ones. Unfortunatly I feel its progressed a little, but Im confidant im just around the corner from being seizure free.
Anyway what I have noticed....is actually very bizarre but after talking w ith my neuro over the phone the other night and explaining she said it didnt sound strange to her at all, but probbaly would to nearly all neurologists (she specialises in epilepsy)
So these triggers.... following multiple conversations with a group of people around me...(not sure if its conversations or perhaps alot going on around me visually) When Im deep in thought (i often spend time alone thinking about theology and philosophy) i tend to start to feel strange.
I am terrible with organizing my finances and keeping track of them (perhaps a little ADD) but when I start calculating what is going on and keeping a budget or often trying to figure out how to not be overdrawn or balancing check book) .. it totally sets me off. I find it extremly hard to just...figure it out..
Card game a few nights ago.... set it off very bad. Also noticed...seeing the psychatrist and therapist, where we discuss dificult things and I get asked alot of questions which I find hard to understand and need them repeated... sets it off... (maybe this is just stress though) but what accounts to the other stuff setting me off is indeed strange to me I have to ask for silence for 5 minutes .. which is frustrating.. but I just need the silence and no stimulation at all
If I am in an aura (tingling prickling and sinking feeling dazing a bit) and someone touches my affected area that jerks ... it sets it off and I just jump
Realize this thread is a little jumpy but hopefully you can understand and make some sense of it lol
Last edited: