Off to my friend the epileptolgist

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pita300

pita300

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yes its that time again. This is the first time I've seen him sice the ambulatory EEG in November. I so want to walk in and say " I told you so":bigsmile: I'll be good and keep my words to my self. I am interested in what they found and where and what they plan on doing to fix it. I am still on my Keppra journey currently at 2500mg working up to 3000. So far no Kepprage or any other side effects. I'm also interested in what he tells me when I tell him i cant afford the 1000.00 a month for the Keppra. will he switch me to the generic? put me on something else? So I am hopeing that this a productive appointment.

Stay tuned I'll post more later!
 
Good Luck! Let us know how it goes! Praying we hear good news!
 
Just back from my friend. We changed the Keppra to generic. instead of 3000mg a day wants to push it to 4000mg per day. Then if thats not controlling the seizure added a 3rd med. The amb eeg was really in conclusive as to where the seizure was coming from. His best guess from the video of the 4 seizures they caught is the frontal lobe but would take further testing from somewhere like the Cleveland Clinic to determine that. Then possibly surgery 9-12 months down the road. I had surgery in my 20s I can't imagine going through it again at close to 50! So some big surprises today that I got tell you I was not expecting.
I call him with an update in 5 weeks when I should be at the target dose for the generic Keppra. Then back to see him March 20th
We'll just have to stay tuned
 
I hope the generic keppra works for you! I tried the generic in November of last year and it didnt go so well for me. I was hoping it would, even just due to the price difference! I was on the generic keppra xr. I had to go back to the name brand, and have been doing good since! Just watch out for anything unusal when going up to that high of dose. In October 2010, my dr put me up to 4000mgs of keppra and I had alot of break through seizures. I felt like a zombie. I had to take myself back down to the 3000mgs, and was better on that dose. Let us know how things go! :)
 
momof3boys said:
I hope the generic keppra works for you! I tried the generic in November of last year and it didnt go so well for me. I was hoping it would, even just due to the price difference! I was on the generic keppra xr. I had to go back to the name brand, and have been doing good since! Just watch out for anything unusal when going up to that high of dose. In October 2010, my dr put me up to 4000mgs of keppra and I had alot of break through seizures. I felt like a zombie. I had to take myself back down to the 3000mgs, and was better on that dose. Let us know how things go! :)
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Thanks Kristin,

I remember you going through the change from the name brand to the generic. I'm hoping since I've only been on it for a short time that I wont see any major changes. We'll just have to wait and see. I did not have good luck with the generic Tegretol Xr. I also joked with him saying that Phenoarb is only like 10.00. He did'nt find it to funny:roflmao:
 
Hi PITA
Good luck with the increase in the Keppra. Fingers crossed the generic brand works for you & you don't have to go to a 3rd med.
 
CQ:) said:
Hi PITA
Good luck with the increase in the Keppra. Fingers crossed the generic brand works for you & you don't have to go to a 3rd med.
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Thanks CQ. If I end up on the 3rd med hopefully that combination will work if not I don't want to think about the next step right now.
 
pita300 said:
Thanks Kristin,

I remember you going through the change from the name brand to the generic. I'm hoping since I've only been on it for a short time that I wont see any major changes. We'll just have to wait and see. I did not have good luck with the generic Tegretol Xr. I also joked with him saying that Phenoarb is only like 10.00. He did'nt find it to funny:roflmao:
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I hope things work out for you! That dr just doesnt have a sense of humor! I think its funny! :roflmao::banana:
 
glad u head back in march for close follow up....was certainly lots to take in..

fingers crossed that generic works well 4 u,,,,some prayers too boot ;)
 
What you said was funny, he doesn't have a sense of humor. Lets hope increase does help, I'm glad things are going forward for you.
 
MuayThaiFighter said:
What you said was funny, he doesn't have a sense of humor. Lets hope increase does help, I'm glad things are going forward for you.
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in his defense the first thing out of his mouth was no it thins your bones! Plus when I was taking that it made me very ugly and I'm not talking looks! nobody wanted to be around me.
 
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I really hope the generic keppra takes care of your seizures, and that will be that...
 
Wishing you good luck on your new treatment path! Sounds like progress is being made!
 
jemsister said:
Wishing you good luck on your new treatment path! Sounds like progress is being made!
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Thaks jemsister, I've been keeping up on your developments I hope all of your upcomming test come out in your favor!
 
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