BlueSkies2220
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Allrighty
Yes, it has been years, and i do mean years [about 6 in fact] where I haven't had a seizure. So nice to feel that comfort..until the other afternoon
Stupid me stays up all night and the next day. Misses a dose or two. Thinking that everything's all right. And so I take my husband's Lyrica, which i take once in a while, as a substitute for my own medication. It has helped me in times past and I even went an entire month while using it when I had no medication of my own to help me.
That afternoon, when i finally got to bed, i was feeling absolutely loopy. So tired. And so i remember getting up out of bed, feeling like i had to use the bathroom, but my pants were soaking wet, [sign #1] and i barely made it to the bathroom. I stumbled in there and by that time, it seemed like, whats the use? It was too late.
It was foggy but i remember being on the 'loo, and waking myself up when my head almost hit the side of the tub. I was so tired that i had fallen asleep on there. I don't remember walking in there, but i do remember getting out of bed. And i don't remember sitting on the toilet but i must have because I do remember leaving the bathroom. [sign number 2]
My cat meowed, so i went into the livingroom and got her food and poured some in her bowl. I took the catfood back to the bedroom with me [and i dont know why?!] and set it down. I literally fell on the bed from exhaustion.
Time passes and I fall asleep instantly. woke up with a splitting headache and when i got up out of that bed, the back of my legs hurt [that oh so familiar pain of what it was like to have a seizure, sign number 3]
So during the rest of the day, i kept commenting to my husband, that my legs hurt, just like they did whenever I had a seizure. I don't know why but my legs do hurt in that way, and sometimes my arms hurt. I have a history of CPS combined with generalized tonic clonic.
Now, the next night, as i sit here and write this, my tongue starts to hurt. And its hurting in places that it shouldn't...like the center of my tongue, as if i had bitten down on it, and on the side where it's raw, and underneath where its been scraped.
What's strange is that it did not hurt yesterday after i had gotten out of bed. and i ate today and my tongue felt fine. It wasn't until tonight, about 24hrs later that my tongue now feels raw!!
The thing that bothers me is the total lack of control as i was getting up out of bed. usually when i have to go, i have to go, but ive never in my life just let go while i was on the way to the bathroom. getting there was a haze. and when i have my CPS [complex partials] i have the habit of going to the bathroom to hide, its just what i've always done.
There is absolutely no reason for my legs to feel the way that they did unless I did have a seizure, becaue i remember being absolutely tired when i got out of bed, so i know that i rested for at least a few hours. and i remember taking a headache powder because my head was splitting when i woke up.
That afternoon I felt like i had a sleepwalking episode. I have never sleptwalked in my life. I thought i sleptwalked because i remember being half asleep while i was up.
Ok, question for those who are experienced with sleep seizure. I have a history of seizures in my sleep, tonic clonics. Is it possible to have a seizure, wake up from it, then in my post-ictal phase do something silly and irrational like i did by bringing the catfood into my room, then wake up a few hours later, without having the typical memory loss that i associate with it, but still feel a pounding headache, feel my leg muscles hurt, and then, 24hrs later feel the injury on my tongue?
For those of you who have experienced tongue biting, could it be more than a day before you feel the injury from it? Honestly, its been 6yrs since ive felt the pain that it causes and my seizures when they generalize typically cause that for me, but its been so long that I forgot what its like. If i could confirm that somehow then i would know, with absolute certainty that's what happened. you dont just bite your own tongue unless you are having a seizure and it does not hurt in the way that mine does just on its own. it feels raw and scraped and i can see where its cut.
From everything that I experienced, i am very worried that I had a seizure in my sleep. With no one around to see it, and with the experience being a blur in my mind, yet feeling injury from it, thats what it feels like.
I haven't had one in over 6yrs but i know that all it takes is something like staying up all night to lower my threshold.
Frankly, im kinda scared and half tempted to up my dose just for a week or so.
No, I dont have a doctor. Please don't tell me to go see one, ive heard it all before, and i know that you guys care, but im looking for answers to confirm what i think that i already know., thats all.
Oh, and before i went to bed, i was a total emotional wreck, crying, and i am not usually so moody. thats another sign that i look at. and prior to that, i had headaches every day that week, some of them incurable by my good old standby BC headache powder [which usually does the trick]
Yes, it has been years, and i do mean years [about 6 in fact] where I haven't had a seizure. So nice to feel that comfort..until the other afternoon
Stupid me stays up all night and the next day. Misses a dose or two. Thinking that everything's all right. And so I take my husband's Lyrica, which i take once in a while, as a substitute for my own medication. It has helped me in times past and I even went an entire month while using it when I had no medication of my own to help me.
That afternoon, when i finally got to bed, i was feeling absolutely loopy. So tired. And so i remember getting up out of bed, feeling like i had to use the bathroom, but my pants were soaking wet, [sign #1] and i barely made it to the bathroom. I stumbled in there and by that time, it seemed like, whats the use? It was too late.
It was foggy but i remember being on the 'loo, and waking myself up when my head almost hit the side of the tub. I was so tired that i had fallen asleep on there. I don't remember walking in there, but i do remember getting out of bed. And i don't remember sitting on the toilet but i must have because I do remember leaving the bathroom. [sign number 2]
My cat meowed, so i went into the livingroom and got her food and poured some in her bowl. I took the catfood back to the bedroom with me [and i dont know why?!] and set it down. I literally fell on the bed from exhaustion.
Time passes and I fall asleep instantly. woke up with a splitting headache and when i got up out of that bed, the back of my legs hurt [that oh so familiar pain of what it was like to have a seizure, sign number 3]
So during the rest of the day, i kept commenting to my husband, that my legs hurt, just like they did whenever I had a seizure. I don't know why but my legs do hurt in that way, and sometimes my arms hurt. I have a history of CPS combined with generalized tonic clonic.
Now, the next night, as i sit here and write this, my tongue starts to hurt. And its hurting in places that it shouldn't...like the center of my tongue, as if i had bitten down on it, and on the side where it's raw, and underneath where its been scraped.
What's strange is that it did not hurt yesterday after i had gotten out of bed. and i ate today and my tongue felt fine. It wasn't until tonight, about 24hrs later that my tongue now feels raw!!
The thing that bothers me is the total lack of control as i was getting up out of bed. usually when i have to go, i have to go, but ive never in my life just let go while i was on the way to the bathroom. getting there was a haze. and when i have my CPS [complex partials] i have the habit of going to the bathroom to hide, its just what i've always done.
There is absolutely no reason for my legs to feel the way that they did unless I did have a seizure, becaue i remember being absolutely tired when i got out of bed, so i know that i rested for at least a few hours. and i remember taking a headache powder because my head was splitting when i woke up.
That afternoon I felt like i had a sleepwalking episode. I have never sleptwalked in my life. I thought i sleptwalked because i remember being half asleep while i was up.
Ok, question for those who are experienced with sleep seizure. I have a history of seizures in my sleep, tonic clonics. Is it possible to have a seizure, wake up from it, then in my post-ictal phase do something silly and irrational like i did by bringing the catfood into my room, then wake up a few hours later, without having the typical memory loss that i associate with it, but still feel a pounding headache, feel my leg muscles hurt, and then, 24hrs later feel the injury on my tongue?
For those of you who have experienced tongue biting, could it be more than a day before you feel the injury from it? Honestly, its been 6yrs since ive felt the pain that it causes and my seizures when they generalize typically cause that for me, but its been so long that I forgot what its like. If i could confirm that somehow then i would know, with absolute certainty that's what happened. you dont just bite your own tongue unless you are having a seizure and it does not hurt in the way that mine does just on its own. it feels raw and scraped and i can see where its cut.
From everything that I experienced, i am very worried that I had a seizure in my sleep. With no one around to see it, and with the experience being a blur in my mind, yet feeling injury from it, thats what it feels like.
I haven't had one in over 6yrs but i know that all it takes is something like staying up all night to lower my threshold.
Frankly, im kinda scared and half tempted to up my dose just for a week or so.
No, I dont have a doctor. Please don't tell me to go see one, ive heard it all before, and i know that you guys care, but im looking for answers to confirm what i think that i already know., thats all.
Oh, and before i went to bed, i was a total emotional wreck, crying, and i am not usually so moody. thats another sign that i look at. and prior to that, i had headaches every day that week, some of them incurable by my good old standby BC headache powder [which usually does the trick]
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onder: I generally have a vague recollection of what I did, it's very foggy and I don't remember all of it but, I do get snippets. Is it possible there might be more to what you did than you remember?
