On the News

[Cint]

I don't know if I would have wanted this to be myself broadcast on local television, but it obviously didn't bother this young lady:

http://news.yahoo.com/convenience-s...365.html?soc_src=mediacontentstory&soc_trk=fb

 

[CathyAnn31]

Thanks for posting that, cint.

Wow, talk about being at the right place at the right time. It looked like the clerk not only saved the baby, but helped keep the lady from a very hard fall.

Quick thinking not only from the clerk but the male customer as well, she and baby were very lucky, things could have been a lot worse.

 

[masterjen]

I agree that I would not want to be the subject of any video shown to the public. But, this one is a great basis for education to the general public about epilepsy. I wonder if it will be expanded upon as a news segment to make people more aware of epilepsy and what to do to help somebody.

 

[Nakamova]

I love how the male customer carefully sets all his stuff on the counter before going to get help.

 

[ln1]

Thanks for sharing! I was impressed by the clerk's reaction and the fact that she seemed pretty calm. Watching this video made me really think about the people who have witnessed us having seizures. Obviously it's not a walk in the park for us, but I can imagine how traumatic it can be for them, too.

About a year ago, my husband and son saw me having a tonic-clonic and they're still pretty shook up. At the time, my son was 11. He didn't have an appetite for a week after seeing it, and was always asking if I was okay. Even today, if I daydream in their presence, they're both calling my name to make sure I'm not seizing.

 

[Belinda5000]

To many ppl have seen me have sz's and I have my share of focal were I know what's going on so it wouldn't bother me if I was broadcast on tv. I've seen my share on videos anyway.

 

[Cint]

To many ppl have seen me have sz's and I have my share of focal were I know what's going on so it wouldn't bother me if I was broadcast on tv. I've seen my share on videos anyway.

I've had my share of TCs in public, too. And my kids have witnessed them on a few occasions. They've even seen me taken away in the ambulance and thought their mother was dying. But still, I wouldn't want to be broadcast across the city and nation like that.

 

[JJR1956]

I've had my share of TCs in public, too. And my kids have witnessed them on a few occasions. They've even seen me taken away in the ambulance and thought their mother was dying. But still, I wouldn't want to be broadcast across the city and nation like that.

Same here. My kids and wife saw my first grand mal and had no idea what the heck was going on with me. I woke up having EMS guys looking down at me and the wife crying. Nope...wouldn't want that on the news.

 

[acshuman]

Handling of A Difficult Situation

This type of reaction to a person who is having is something that we(people w/E) can only hope would occur any time any of us has a seizure. To have a person dealing with the situation who can do what is needed to be done properly to prevent injury to anyone who may be affected by the seizure is a great thing to have happen.
This clerk needs to be recognized and many other types of stores need to realize that what happened in that store could happen almost any time anywhere!

ACsHuman

 

[ln1]

This type of reaction to a person who is having is something that we(people w/E) can only hope would occur any time any of us has a seizure. To have a person dealing with the situation who can do what is needed to be done properly to prevent injury to anyone who may be affected by the seizure is a great thing to have happen.
This clerk needs to be recognized and many other types of stores need to realize that what happened in that store could happen almost any time anywhere!

ACsHuman

So true...

Training is very important but one thing I've noticed is that even with some training, sometimes unfortunately, one's natural inclination kicks in first. My first experience with tonic-clonics was with my son when he was a baby.

Around the age of 1, he had his first febrile seizure. My husband and I didn't see his very first one, but whenever he had a fever we took every precaution to keep his temperature from rising, but always mentally prepared in case he had one.

One day, my daughter had a doctor's appointment so she and I were out. My son wasn't feeling well so my husband stayed home with him. As I was waiting for my daughter's name to get called, I got a phone call from my husband, hysterically screaming that our son was having a seizure. At this point, my husband had already seen our son have several of them, but I was always there to keep the situation calm.

Like you said, the clerk's reaction is what we can only hope anytime we have a seizure...

 

[Cint]

This type of reaction to a person who is having is something that we(people w/E) can only hope would occur any time any of us has a seizure. To have a person dealing with the situation who can do what is needed to be done properly to prevent injury to anyone who may be affected by the seizure is a great thing to have happen.
This clerk needs to be recognized and many other types of stores need to realize that what happened in that store could happen almost any time anywhere!

As I said numerous times before here on CWE, my children and friends have witnessed me having TC seizures and know what to do. I've even spoke to my kid's schools about E and what to do/not do. One time I was in a public park walking and went into a TC and when I was regaining consciousness I heard someone saying,"shouldn't we call 911?" Fortunately, a woman knew what to do and told them "no" and she was the one who gave me a ride home. She was the one who placed a sweater under my head and guided them all thru it.

My daughter witnessed someone at work once going into a seizure, and because of her experience at home, she was the one who knew what to do.

People are learning what to do as long as we allow others to know how, when and what to do. Some folks aren't willing to do that.

 

[masterjen]

Just curious: if a stranger witnesses another stranger (who is not wearing a bracelet or necklace or other ID indicating they do have a seizure disorder) having a tonic-clonic seizure, shouldn't they call 911? Maybe the very first thing to educate the public about is how/where to look for medical ID, and from there teach when it is necessary to call 911 (ie. seizure over 5 min, injuries, etc.) Unfortunately for all of us (me included) too private or stubborn to wear ID, this means getting and ID necklace or bracelet.

 

[Nakamova]

I think calling 911 would be the safest default action for a stranger witnessing a seizure. As much as it's a costly pain-in-the butt when someone has called 911 on my behalf, I understand the instinct to do so. My friends and family know better, so I would be upset if they brought in the EMTs. I don't expect them to make the right choice in every situation, though. When I had a seizure during a phone conversation, I appreciated that the friend on the other end of the line drove over to check on me. She was close enough to do so. But if she were long-distance, wasn't able to reach me, and called 911, I'm not sure how I would feel. Probably grateful AND really, really, really peeved.

 

[Cint]

Just curious: if a stranger witnesses another stranger (who is not wearing a bracelet or necklace or other ID indicating they do have a seizure disorder) having a tonic-clonic seizure, shouldn't they call 911?

In the example I used, I was NOT wearing a MedicAlert bracelet back then. And the woman who found me didn't know me before then. She was familiar with E and TC seizures because her best friend growing up had E. IMO, if a person's seizure lasts longer than 5 minutes, then, yes, call 911. Or if injured or in doubt.

Maybe the very first thing to educate the public about is how/where to look for medical ID, and from there teach when it is necessary to call 911 (ie. seizure over 5 min, injuries, etc.) Unfortunately for all of us (me included) too private or stubborn to wear ID, this means getting and ID necklace or bracelet.

I DO wear the MedicAlert bracelet ALL the time now, and 911 HAS been called, even for CPs. Like I've been saying, I HAVE BEEN TRYING TO EDUCATE THE PUBLIC!! MY question is: WHO IS LISTENING?!!!!!
Do you tell anyone about YOUR E? If you're TOO STUBBORN, not the public's problem!

 

[acshuman]

Allowing People To Know How To Handle a Seizure

Cint,
You are so right! I have spoken at workshops about E and told the people attending that I have E. Some of the comments I have gotten as a result, from people w/E, has been unbelievable.
I have had people w/E tell me 'How can you talk about E?, it is something that has to kept quiet'. Others have refused to acknowledge that they have E, even though they were answering questions I would ask about E. Somehow they could tell what happened during a seizure, but they didn't have E themselves. I would hear from other people who heard them make the denial, that that person, who denied having E, had E.
These people, many times, are the same people who complain about how nobody knows anything about E and how to deal w/E.
If a person is not going to be open about their E, they sure can't expect everyone else to miraculously learn about E!:twocents:

ACSHuman

 

[masterjen]

In the example I used, I was NOT wearing a MedicAlert bracelet back then. And the woman who found me didn't know me before then. She was familiar with E and TC seizures because her best friend growing up had E. IMO, if a person's seizure lasts longer than 5 minutes, then, yes, call 911. Or if injured or in doubt.

I DO wear the MedicAlert bracelet ALL the time now, and 911 HAS been called, even for CPs. Like I've been saying, I HAVE BEEN TRYING TO EDUCATE THE PUBLIC!! MY question is: WHO IS LISTENING?!!!!!
Do you tell anyone about YOUR E? If you're TOO STUBBORN, not the public's problem!

Definitely was not my intention with my above post to question you personally, cint. I was just sharing my thoughts on the subject in general, and they were not directed to any one person. Sorry I upset you.