Online Diary

[MadameJ]

Is anyone using the epilepsy.com epilepsy diary?

What do you think? I just started playing with it and it is very easy and
not time consuming at all.

Previously, I have been using evernote as a diary for my meds and episodes but this is just a push of a button.

I discovered it on iTunes as an app but you must activate it through the website.

 

[Mono]

Yeah I use it to note down my tonic clonics but don't bother with the complex partials as they're a pretty regular occurance. My neuro hates me being vague.

 

[Endless]

Keeping a seizure journal is important. I'm so glad you keep yours up!

Here's a thread with a bunch of options:

http://www.coping-with-epilepsy.com/forums/f23/seizure-journals-10776/

 

[Chel]

Is anyone using the epilepsy.com epilepsy diary?

I use it, only on my desktop, as I don't have any handheld devices. I found the graphs great evidence of my sz types, when attending neuro appointments, and these contributed to an increase in my medication. I just don't think my neuro was listening to me without that evidence.

The only addition I would like is the addition of a dietary monitor, as I have a lot of food triggers. Yes, I can note them in the Notes section, but there is nothing like those graphs for detecting a pattern. Otherwise, it does a good job.