Ooooohhh! 911? uncontrolled epilepsy

[illuminatedsquid]

Anyone call 911 before seizure or have a way of alerting help if you live alone or have family that's does not give a damn either way ?
Uncontrolled

 

[Nakamova]

Do get have warnings before your seizures? If so, you could try one of those medical alert systems that will contact a service with the push of a button:
http://www.consumerreports.org/cro/2014/06/what-to-look-for-in-a-medical-alert-system/index.htm

 

[Belinda5000]

Why would I want medical alert they only take you to the E/R. I only need e/r visits when I have hurt myself or I am bleeding profusely. Not everyone needs to go the E/R because they have uncontrolled epilepsy.

 

[Cint]

Why would I want medical alert they only take you to the E/R. I only need e/r visits when I have hurt myself or I am bleeding profusely. Not everyone needs to go the E/R because they have uncontrolled epilepsy.

I beg to differ, but a MedicAlert is a bracelet or necklace that one can wear that will tell the paramedics of the medical issues one is dealing with. I wear a MedicAlert bracelet and several times 911 has been called when I've had a severe tonic/clonic seizure. They still take me to the ER, even with the info on the MedicAlert bracelet. There have been other times I've had a T/C in public and 911 hasn't been called. It all depends on the folks around and how educated they are on the subject.

 

[masterjen]

Why would I want medical alert they only take you to the E/R.

If by medical alert you are meaning those systems where you push a button for assistance, many have the ability to direct the call to friends or family first and in order of preference as to how you set up the device. For instance, someone may want their father to be phoned first and if no answer the call goes to a brother, etc. and if no answer after a specified number of people have been tried only then does the call go to the call center. The user decides on the number of non-medical people to be contacted first, or he/she may prefer to have 911 called right away.

 

[Belinda5000]

If I f hurt myself I'll take care of myself, and I will not go to the E/R just because I'm seizing.I didn't go to the E/R when I went into multiple sz's on several different occasions and I was having10-20 seizures in10- minutes or so.

I didn't hurt myself and I came out of my sz's.

 

[valeriedl]

I beg to differ, but a MedicAlert is a bracelet or necklace that one can wear that will tell the paramedics of the medical issues one is dealing with. I wear a MedicAlert bracelet and several times 911 has been called when I've had a severe tonic/clonic seizure. They still take me to the ER, even with the info on the MedicAlert bracelet. There have been other times I've had a T/C in public and 911 hasn't been called. It all depends on the folks around and how educated they are on the subject.

I wear a medic alert bracelet and it says on it that I have epilepsy, meds that I am allergic to and that I cannot have an MRI. If I were to be taken to the ER these are things that they need to know.

If by medical alert you are meaning those systems where you push a button for assistance, many have the ability to direct the call to friends or family first and in order of preference as to how you set up the device. For instance, someone may want their father to be phoned first and if no answer the call goes to a brother, etc. and if no answer after a specified number of people have been tried only then does the call go to the call center. The user decides on the number of non-medical people to be contacted first, or he/she may prefer to have 911 called right away.

If this is what you mean I don't think it would really do me any good. I very rarely have a simple partial before I have a complex partial or TC (which I almost never have) seizure. If I do have a simple partial it's usually so short that by the time I realize I'm having it it's too late and I've gone into the worse seizure.

I have a VNS that I can use if I feel the seizure coming on. But as I said by the time I know I'm having a seizure it's usually too late. My husband has seen me having a complex partial seizure and rubbing the VNS magnet on different parts of my body, like my leg or stomach, instead of using it on my chest. So I must have known I was having a seizure but didn't catch it in time to use the VNS properly.

I usually don't even know that I've had a seizure unless there is someone there to see it happen and tell me. I know that I've probably had a good many seizures at home alone. I'll have a very bad headache, which I get often after a seizure, and that's how I know that I might have had one.

My family and friends won't call 911 unless I've been having a seizure longer than 15 minutes and haven't started to come out of it or if I'm having one seizure right after another with basically no gap between them. If I were to have a seizure alone in public there's a good chance that 911 would be called, even if they really didn't need to be, but I know that I'd be able to get help if I needed it. I couldn't do that at home alone - I don't think the cats know how to use the phone?

I started this poll about this topic:

http://www.coping-with-epilepsy.com...r-have-seizure-home-alone-public-alone-25131/

 

[Belinda5000]

medic alert is also a button that can be pushed in case of emergency. I also have medic alert necklace and I won't wear it because I found out paramedics don't look at them. I carry something on my a card that says I have epilepsy don't freak if I fall just turn me on my side and move anything out of the way and don't call 911 unless I'm hurt and bleeding profusely.

 

[illuminatedsquid]

Wearing ones seems nice and it's a good solution to many problems , I have lost quite a few