raggedyann
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Hi All,
I am new and as I have looked I notice that most all of you have a diagnosis of one form or another. I have done research on my own based on the things that I have seen with my daughter and have put two and two together and come up with what I think is nocturnal seizures and there may be other things I am not aware of. My daughter has two syndromes that both give her higher chances than non-syndrome girls (these syndromes are gender specific). We have a family history of I think just grand mals, my grandfather and my aunt who passed at 18. This is what I see:
She has since she was old enough to attend school been very hard to wake, to the point that we would dress her in her sleep and carry her in to daycare for them to get her to school. On some days she is tired and can't stay awake long enough to dress herself. There are times when no matter what I do I can't wake her, I see that her eyes are half opened. She never stops moving in one way or another in her sleep and especially if she sleeping with me and or my husband. This doesn't happen every night. I have a hard time getting her to go to school on these days or she goes late. She begs to stay asleep that she is so tired and you can see it in her eyes, they look weak.
I see and feel alot of twitching in her legs and arms and it starts within a half hour after she seems to have fallen asleep. I have seen her look like she is going to throw up in her sleep, like she is gagging, but not in her face, it is in the body in the abldominal area. It's like she bends in at the waist and does this a couple of times. I feel and see her extend her legs out hard, stiff. She moves and rolls alot. Punches and kicks. I have not tried catching this on video yet. I am so frustrated at the thought of this I know I am leaving something out.
Please, if you have ideas and questions to make it clearer for me please ask away. I can probably be more specific that way. I am really worried about this as I think it has been ongoing since at least her first couple of months after birth. High anxiety also......
I am new and as I have looked I notice that most all of you have a diagnosis of one form or another. I have done research on my own based on the things that I have seen with my daughter and have put two and two together and come up with what I think is nocturnal seizures and there may be other things I am not aware of. My daughter has two syndromes that both give her higher chances than non-syndrome girls (these syndromes are gender specific). We have a family history of I think just grand mals, my grandfather and my aunt who passed at 18. This is what I see:
She has since she was old enough to attend school been very hard to wake, to the point that we would dress her in her sleep and carry her in to daycare for them to get her to school. On some days she is tired and can't stay awake long enough to dress herself. There are times when no matter what I do I can't wake her, I see that her eyes are half opened. She never stops moving in one way or another in her sleep and especially if she sleeping with me and or my husband. This doesn't happen every night. I have a hard time getting her to go to school on these days or she goes late. She begs to stay asleep that she is so tired and you can see it in her eyes, they look weak.
I see and feel alot of twitching in her legs and arms and it starts within a half hour after she seems to have fallen asleep. I have seen her look like she is going to throw up in her sleep, like she is gagging, but not in her face, it is in the body in the abldominal area. It's like she bends in at the waist and does this a couple of times. I feel and see her extend her legs out hard, stiff. She moves and rolls alot. Punches and kicks. I have not tried catching this on video yet. I am so frustrated at the thought of this I know I am leaving something out.
Please, if you have ideas and questions to make it clearer for me please ask away. I can probably be more specific that way. I am really worried about this as I think it has been ongoing since at least her first couple of months after birth. High anxiety also......