people assuming about your epilepsy

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I guess I need to not think my kids assume as much as I thought. They took me out of town to eat with them tonight (last night, Wed.) and then we did first of the month shopping at Wal-Mart. Last time we went they wouldn't let me out of their sight. This time they didn't even blink. I went off on my own. Not treating me like a child to be handled with care. :) Well accept when I got out of my daughters new full size truck she got this week. They made me hold onto them and let them help me. lol I guess in their eyes I'm OLD or may be they just want to protect me and they see that as a bigger threat than E.
 
I understand what you mean with other people assuming. When I fall my mom will automatically assume I had a seizure. its like everything I do wrong, she thinks I had one. But she cares and I guess she just wants to be sure that I didn't have one.
 
anyway...I'm getting sick of ignorant people making jokes about a condition you obviously can't control...they treat you like you're crazy or some stupid pill junkie...like you consciously decided to be the way you are...I swear I get so angry with these fools I just want to bash their faces in...a friend of mine says I should get a punching bag...but my wife says no because it will reinforce violent behavior...something I am prone to but only because I feel misunderstood... (good thing I'm going to counseling)

let's face it...people who don't have a unique condition like us will NEVER understand...even though being human itself is a condition it still doesn't negate the fact that these idiots will constantly abuse you mentally and emotionally with their carelessness...sickening
 
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with me not only do they have to wrap their heads around me having epilepsy, but they don't/can't understand that I have a sleep disorder as well. So my best prevention of seizures is sleep, a full REM cycle and Im good to go. For some reason they think it's some kind of coincidence that I have both or they can't fathom how they can stay up late and party sleep a few hours and go to work and I can't. It's been a frustrating battle
 
Moon, many of us have struggled with sleep disorders at one or other time of our lives. For me, the worst seizures happen when I'm sleeping and when I haven't had enough sleep. I suspect that the insomnia issue is because our minds tend to run on overdrive with little provocation, and the racing thoughts make it really hard to sleep. That and mood swings--we get moods that are overly 'up' and that, again, causes insomnia.
 
It can get frustrating when the medical response team at university assume that any time they are called out to me is because I'm having a seizure. Like when I was having a panic attack last year while I was anticipating getting a call from home to tell me my grandmother had died. None of the symptoms I was mentioning were symptoms I had had with a seizure before but they still just assumed it was a seizure, eventually after 30mins they noticed I was hyperventilating.
Also I met one person on campus who assumed that I must be stupid and have learning difficulties because I had epilepsy, that really did make me upset and angry
 
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