Hi there,
I am new to this site and I am very grateful to have been introduced. My son, has been diagnosed with cortical dysplasia and has been having seizures since day two of life. For the first 6 months of his life, this seizures have been under control with Phenobarb and it was just a dream. We thought we had this licked but of course the rug has been pulled and he has been having breakout focal seizures on the pheno and his dose his getting out of the therapeutic range and I do notice he has become much more irritable.
I believe the next step is Topamax and I was wondering if I could get some feedback on the medication especially from those who have little ones on it.
This is such a scary time for us, he is a beautiful little boy and I do hope we can find the right meds for him.
Thanks so much in advance,
Allison
I am new to this site and I am very grateful to have been introduced. My son, has been diagnosed with cortical dysplasia and has been having seizures since day two of life. For the first 6 months of his life, this seizures have been under control with Phenobarb and it was just a dream. We thought we had this licked but of course the rug has been pulled and he has been having breakout focal seizures on the pheno and his dose his getting out of the therapeutic range and I do notice he has become much more irritable.
I believe the next step is Topamax and I was wondering if I could get some feedback on the medication especially from those who have little ones on it.
This is such a scary time for us, he is a beautiful little boy and I do hope we can find the right meds for him.
Thanks so much in advance,
Allison