Pnpo deficiency - seizures

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Arb26

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My 2 month old has been diagnosed with rare genetic condition of PNPO deficiency at birth following onset of cluster of seizures.

She is currently on PLP therapy.

Any experiences to share with this condition and development prognosis?

Thanks
 
Hi Arb26, welcome to CWE.

We have a member here @Andrew that has PNPO deficiency and manages his seizures with B vitamins:

Vitamins and Epilepsy

Has anyone had problems taking vitamins? Calcium and magnesium are involved in neuro transmitter function. I think my sodium levels got really low about a week ago (based on previous experience and tests). So, I started taking some vitamins. I'm feeling better, but I'm also more seizure-y...
www.coping-with-epilepsy.com www.coping-with-epilepsy.com
 
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