Ok, so I kind of like to take this opportunity to introduce myself, as I am new here. I started having myoclonic jerks when I was sixteen years old. I thought nothing of them at the time, as I had no diagnosis, and had never had a tonic clonic seizure. I blamed it on being tired or partying too much. As a particularly rebellious teenager, I experimented with quite a few drugs around that time. I developed an addiction, and decided to get clean. I had been sober for more than six months. I was staying with my grandparents one night, as I often did. I was up stairs watching a movie when I had my first tonic clonic seizure. My grandfather said he heard a crash, and ran upstairs to check on me. He found me convulsing on the floor, and waited until the seizure was over. He tried to rouse me, I came to for just a second and saw the fear in his eyes. My vision immediately failed me, and I was plunged into darkness. I cried out to him and thought I was communicating, only to find out later I was babbling. I was rushed to the small hospital in my town, and they pumped my stomach, told my mom I was probably on drugs, and completely wrote me off... Because three hours after my seizure, I was not regaining consciousness. My drug screen came back clear and after a couple days of being unconscious in the hospital I was sent home. It took me about two weeks to feel normal again. My second seizure happened a month later at my father's house a town over from where I was living. I was again rushed to the ER, to a different hospital. The doctors there suggested that I was an attention seeker, and told my mom I should be put in the psych ward. My mom was so angry, she demanded that I be transferred to MUSC, a very large hospital in my area with an excellent neurology department. Once I regained consciousness, I met with the doctor and we talked about my symptoms. His immediate diagnosis was post ictal psychosis. We were so relieved to finally have an EEG done and have some answers! However, my own research about PP has me thinking that it's not an accurate diagnosis. I am in a practical coma for days after my seizures, unable to eat, and in adult diapers. I am never combative, violent, or overly emotional when I regain consciousness, only confused and upset at the realization of what happened to me. It takes me weeks to feel normal again... I also have extremely impaired cognitive function, some of which has proven to be permanent. I'm just wondering if any of you have experienced this, or a misdiagnosis of PP. I am currently 3 years without a tonic clonic seizure, but still have abscence seizures fom time to time. I crave information, and it's extremely frustrating not knowing what really happened to me. I would like to also add that I have a 12 year old sister wih the same kind of epilepsy as me, who comes out of her seizures almost immediately. Also, would like to mention that I've had emts says they've never seen anything like my seizures. If it matters at all 
thanks for any advice!
thanks for any advice!
