Postictal Psychosis

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KaySara

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I have twice suffered with postictal psychosis, a state of hallucinations. Both times I was confined to hospital, first time I have very little memory of it and doctors and family were very worried my memory wouldn't return. Doctors had no idea what my problem was. That was two years ago.
It returned recently and this time I recall the whole incident from beginning to end, when I slipped into the hallucinations I was in a 'happy wonderland' and didn't want to return. My family were in a state of hell and the doctors were baffled. It was my son who told them my trouble and they admitted that is my illness. I am now being treated for Postictal Psychosis and it is a serious illness connected to epilepsy and I am scared.. I am asking if any of you suffer from it and of your experiences.
 
 
I just got out of the hospital the end of April. That is what I had. I am getting memory back bit by bit but not much yet. I can remember a lot of the hallucinations though. It was so scarey for me as well as my family. I hope this never happens again. On the 19th of this month I am seeing a neuro/eptol instead of my normal neurologist because of it.

How are they treating you for it? Just curious. I had never heard of it before it happened to me this April. :(
 
Penny, good to hear from you and to hear of your experience. Sounds very like mine. I remember a lot of mine, it wasn't scary at the time but very scary to think back on it and to read up on it. The hospital couldn't treat me for it. My family took me home and tried to look after me and I just recovered in my own time. The specialist I attend for my epilepsy to try and control my seizures recommended I attend a psychotherapist and that is what I am doing. If that will do me any good I don't know. I have a very bad short term memory which I find annoying and frightening at times when I cant remember everyday simple words, eg 'word'. It returns when I don't panic, it is a nuisance more than anything. Of course I don't remember events which don't return and I don't try and remember, just let them go....
 
Oh my. So much in common. However, I was put on the psych ward, watched carefully and a neruo/epiloligist came to see me daily. I had a councelor as well. Apparently I was hearing voices and noices outside my windows. I was sure my whole family was "in on it", whatever "it" was. I even thought my cat was a robot spying on me to tell everyone what I was doing. These things I remember and it felt SO real.

During the middle of talking now I will lose some words and really have to "serch" for them. It is so frustrating. I had a meeting with my counceler yesterday that was suppose to be an hour and lasted 1 1/2. She is really helping me through a lot of these horrible feelings that are going along with it. I'll let you know how my appt. goes on the 19th.

Hope all stays well for you. If you want to talk you can always post or PM. I'm fine either way. :)
 
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