Potiga

[C0urt]

yeah, i am building a tolerance, i was told to up my dosage if i did to 300mg,

basically if I miss my dosage or they are too far apart. I am almost sure to have a seizure, or to just pass out since I bicycle commute. At least just to feel like crap for a bit. I would rather not raise my dose yet, even though I know what happens if I miss a dose.

I think that is mostly my fault when I miss doses, I have a poor memory and sometime am in a rush in the morning. which means at 5:00pm I am guaranteed to feel bad later if i rushed twiced on a bike

No real side effects
just feel tired
lately there have been some night time seizures or coming home after work and having sleepy time seizures.

felt kind of bad going to talk to a friend right after getting back to my apartment building. sitting on his sofa, then having a seizure. forgetting about it and thinking we a had a had a conversation. luckily he was used to it.

 

[kathya410]

I have never heard of potiga. However the last time I saw my neurologist he said he was going to try something new if I was not doing any better. Well, I'm not doing any better, so when I go back to see him in 2 weeks maybe he will prescribe this. If you're having success with this I would to try it.

 

[C0urt]

part of whats been happening lately is mostly fault. The meds worked great the first six weeks I was on them. there was a lost less stress. i just have been busy lately.

I need to eat later in the day, and closer to my second dose.
plus the bike commute dosen't help

I am going to have to force myself to eat now and see what happens. See if it helps, I am sure it is just food, and not something that just layering more meds on will help.

 

[karend03]

I started Potiga when it first came out, in September, I think. It does nothing for me. I gained about 20 lbs during those months, and I stat confused most of the time. My husband calls it my "zone". I saw my neuro today, and he's taking me off of it and trying Vimpat again

 

[C0urt]

you were on just the potiga ?

 

[Becci90]

I know this is a bit of an old post now but I started Trobalt (Retigabine) a few months ago I'm wondering if anyone has had surgery whilst on them and what if any problems they had. I'm having an op (unrelated to E), in about 4 weeks. Also what dosage are you on, and what other Aed's are you on? I'm on 600mg Trobalt and 800mg Tegretol.

 

[Crash]

yes iv'e had unrelated surgery to epilepsy on three occasions.I was on Epanutin when i got my tonsils out,with no adverse effects,800mg of Tegretol for stiches on a tendon in my hand.Also 2000mg of Epilim and 800mg of Tegretol for the removable off an ingrowing hair,all with no effects.Someone will come round and ask you about what medication you are on(etc) before,so there is nothing to worry about.

 

[Becci90]

Thanks Crash, I've already had my pre-op and they've gone through most things but they've told me my anesthetist (sp?) might want to get hold of me before the op to make any changes to dosage, put any plans into place in case I have a seizure ect.
I've had a few ops before but it was before I was put on medication so it's making me a bit nervous. I'm getting a lap and dye, hysteroscopy & endo biopsy done.

 

[Crash]

Best off luck and i hope all goes well for you Becci90!

 

[Becci90]

anesthetist (sp?)

That's supposed to be (spelling?) didn't realise it had been auto corrected. Oops. Thank you again Crash. The ops not till the start of May though, four weeks to wait.

 

[C0urt]

kinda paranoid, when my samples run out, going to be on 500 a month some odd co-pays, looking for decent insurance or med help, also having weaned off tegratol potiga will be main med

 

[Crash]

How are you finding the Potiga? I am going to mention it to my nuero at my next appointment,so hopefully i might get off that horrible pill Depakote.Although im also on Tegretol as well.