Psychology survey

[psych_project]

Hi 

I’m doing a project for my psychology class. I would love it if some of you could take this quick survey, especially those not on oxcarbazepine. I don’t need to know how you are this is completely anonymous. If you want to be in any other survey I have to do in the future you can send your email, but as I said its not required








































Gender?
Male or female or N/A

Age?

At what age did you start taking medication?

What type of medication(s) are you currently taking?

How much of each medication(s) are you taking?

What type of seizures do you currently have?
Generalized or Partial

How much to do remember from before meds?
Everything or some or nothing

How much do you remember since meds?
Everything, some or nothing

Are you as sharp as you were without meds (i.e. awareness, reflexes)?
Mostly or some, none

Do you have to learn things over again?
Everything or some or nothing

Do you know what causes seizures? (i.e. tiredness, flashing lights, stress)
Yes or no

My seizures usually occur out of the blue (i.e., without warning).
Yes or no

I usually know when I will have a seizure.
Yes or no

I usually know when I have had a seizure.
Yes or no

My meds control my seizures.
Yes or no

My meds have no obvious side effects.
Yes or no

 

[Porkette]

1. started taking med at age 10 (53 now).

2. Diamox, Vimpat, Mysoline, Folic Acid
on my own zinc, vitamin B12, multiple vitamins and vitamin C

3. Vimpat 300 mg. a day, Diamox 1000 mg. a day, Mysoline 750 mg a day
Folic acid 5 mg a day.
zinc 100 mg. a day, Vitamin B12 1000 mcg. once a day, Vitamin C 1000 .
mg a day, multiple vitamins once a day vitamin amount varies for each.

4. Generalized and Partial

5. Everything

6. some things

7. some

8. nothing

9. Yes. stress, lack of sleep ,low pressure in the weather, lack of serotonin in the fall and winter months.

10. Most of my seizure happen without a warning but many times I will have a
aura (simple parital seizure) before a complex partial or absence seizure.

11.I sometimes get a warning before a seizure seeing colors in my eyes, hearing one word repeated over and over when nobody is saying anything, or I get a nervous feeling in my stomach.

12. I can usually tell after I have had a seizure because I'm confused for a few seconds after the seizure is over.

13. NO my meds haven't been able to stop my seizures but they have reduced them a little. I found out I am drug resitant through testing.

14. Vimpat has caused rapid heartbeat at time, Mysoline caused frozen shoulder. Diamox I had no problems with.


Good luck with your survey and study, May God Bless You!

Sue

 

[Nakamova]

Hi 

I’m doing a project for my psychology class. I would love it if some of you could take this quick survey, especially those not on oxcarbazepine. I don’t need to know how you are this is completely anonymous. If you want to be in any other survey I have to do in the future you can send your email, but as I said its not required.

Gender?
Male or female or N/A
Female

Age?
51

At what age did you start taking medication?
35

What type of medication(s) are you currently taking?
Lamotrigine

How much of each medication(s) are you taking?
200mg/day

What type of seizures do you currently have?
Generalized or Partial
Generalized

How much to do remember from before meds?
Everything or some or nothing
Everything

How much do you remember since meds?
Everything, some or nothing
Everything

Are you as sharp as you were without meds (i.e. awareness, reflexes)?
Mostly or some, none
Mostly
(note, the answer options are bit unclear; I am entirely as sharp as I was without meds.

Do you have to learn things over again?
Everything or some or nothing
Nothing

Do you know what causes seizures? (i.e. tiredness, flashing lights, stress)
Yes or no
no

My seizures usually occur out of the blue (i.e., without warning).
Yes or no
yes

I usually know when I will have a seizure.
Yes or no
no

I usually know when I have had a seizure.
Yes or no
yes

My meds control my seizures.
Yes or no
yes

My meds have no obvious side effects.
Yes or no
Mild side effects

 

[Belinda5000]

I started taking meds when I was two. (age now 54)

I'm now taking Tegretol 900MG a day Topamax 500MG day Fycompa 8MG day

I have partial seizures,absence,tonic clonic generalized and I don't remember my absence but my partial I remember and I see what happens and hear.
I don't always no when I have a sz.
I remember mine to well.

 

[Labrat]

Hi


Gender?
Female

Age?47

At what age did you start taking medication? 3

What type of medication(s) are you currently taking? Epilim Chrono & Topamax

How much of each medication(s) are you taking? 500mg x 2 daily, 200mg x2 daily

What type of seizures do you currently have? Generalised TC's and simple partials of occipital origin


How much to do remember from before meds?
Everything

How much do you remember since meds?
Everything

Are you as sharp as you were without meds (i.e. awareness, reflexes)?
My memory of my life prior to age 3 is sketchy, I seem to recall falling over a lot. Possibly the meds improved things. I was a gymnast and a swimmer as a kid my reflexes and awareness appear to work fine.

Do you have to learn things over again?
Oddly I've been told I have a better memory than most people, but then my Mum was dux of the school and on my Dads side they are all doctors and vets...Dad rebelled and ran off to join the army. I take the rebellious bit from him.

Do you know what causes seizures? (i.e. tiredness, flashing lights, stress)
extreme stress - has to be in spades. Last time I got the news that the pool I was working in wanted me to move 68 lessons out that week and that Dad had died on the same day.

My seizures usually occur out of the blue
no

I usually know when I will have a seizure.
Yes

I usually know when I have had a seizure.
Yes

My meds control my seizures.
Yes

My meds have no obvious side effects.
Yes Topamax affects the hormones that regulate appetite and as a safety mechanism if you arent eating enough your metabolism slows to stop you starving. I eat when I set reminders, try and make sure it is healthy, but I don't really enjoy food any more. I asked to be put on Epilim in the hope that my weight would increase after the disafters of keppra/topamax.


What hypothesis are you testing with the questions?

 

[TongueTied]

Gender?
Female

Age?
20

At what age did you start taking medication?
11months

What type of medication(s) are you currently taking?
Epilim, keppra, clonazepam, tegretol

How much of each medication(s) are you taking?
Epilim (2000mg/day), keppra (3000mg/day), clonazepam (6.5mg/day), tegretol (800mg/day)

What type of seizures do you currently have?
Generalised. TC, Atonics, Tonics and Absences.

How much to do remember from before meds
Nothing I guess, I was too young.

How much do you remember since meds?
Some, my memory is pretty limited

Are you as sharp as you were without meds (i.e. awareness, reflexes)?
Some? Probably due to other medical conditions (cerebral palsy) as well though.

Do you have to learn things over again?
Some. Mostly smaller things that I don't do on a daily basis eg. tying my shoes ��

Do you know what causes seizures? (i.e. tiredness, flashing lights, stress)
Yes, I know what can cause my seizures or make me more likely to have seizures, like flashing light, tiredness, missing medication, over-heating, physical exhaustion.

My seizures usually occur out of the blue (i.e., without warning).
Yes

I usually know when I will have a seizure.
No

I usually know when I have had a seizure.
Sometimes. I'm pretty confused afterwards, sometimes I'll realise I've had a seizure hours later.

My meds control my seizures.
No. They've slightly cut back on the number of smaller seizures (like absence seizures) but I still end up in hospital a fair lot. Meds haven't made much difference.

My meds have no obvious side effects.
NO. I have horrible side effects.

 

[N Sperlo]

Keeping in mind I'm on oxcarbazepine, I'll still play ball...


Gender?
Male

Age?
29

At what age did you start taking medication?
16

What type of medication(s) are you currently taking?
Oxcarbazepine, Levetiracetam

How much of each medication(s) are you taking?
OX: 300mg/2x daily, Lev: 2000mg/2x daily

What type of seizures do you currently have?
None, but have had multiple types.

How much to do remember from before meds?
Everything, I guess....

How much do you remember since meds?
Everything, (about as much as before, I think)

Are you as sharp as you were without meds (i.e. awareness, reflexes)?
Yes

Do you have to learn things over again?
nothing

Do you know what causes seizures? (i.e. tiredness, flashing lights, stress)
Yes

My seizures usually occur out of the blue (i.e., without warning).
no

I usually know when I will have a seizure.
no

I usually know when I have had a seizure.
Yes

My meds control my seizures.
Yes

My meds have no obvious side effects.
Yes

 

[CQ:)]

Gender?
Male or female or N/A
Female

Age? 37

At what age did you start taking medication?
Not sure of age as I was a baby, took seizures from 9 months - 3, taken of meds when I was 7. Started taking seizures again when I was 24 & was put straight back on meds.

What type of medication(s) are you currently taking?
Tegretol & Keppra

How much of each medication(s) are you taking?
Tegretol 400mg AM/PM & Keppra 1000mg AM/PM

What type of seizures do you currently have?
Generalized or Partial
Simple partial (Focal)

How much to do remember from before meds?
Everything or some or nothing
Everything

How much do you remember since meds?
Everything, some or nothing
Everything

Are you as sharp as you were without meds (i.e. awareness, reflexes)?
Mostly or some, none
Some

Do you have to learn things over again?
Everything or some or nothing
Some, more when I haven't done something for a while.

Do you know what causes seizures? (i.e. tiredness, flashing lights, stress)
Yes or no
Yes, fatigue & stress

My seizures usually occur out of the blue (i.e., without warning).
Yes or no
No I get an aura

I usually know when I will have a seizure.
Yes or no
No, its usually random times

I usually know when I have had a seizure.
Yes or no
Yes

My meds control my seizures.
Yes or no
Sort off. I had brain surgery in 2011 as meds didn't control the complex partials. Now have focal seizures which happen every now & then

My meds have no obvious side effects.
Yes or no
No major side effects

 

[valeriedl]

Gender?
Male or female or N/A
Female

Age?
39

At what age did you start taking medication?
27

What type of medication(s) are you currently taking?
Depakote - 1000mg am/pm
Tegretol - 800mg am/pm
Keppra - 1500mg am/pm
Lamictal - 325mg am/pm


What type of seizures do you currently have?
Simple and complex partial and TC

How much to do remember from before meds?
I started taking meds when I was first diagnosed with epilepsy and I remember some of what happened before then.

How much do you remember since meds?
Some


Are you as sharp as you were without meds (i.e. awareness, reflexes)?
Mostly

Do you have to learn things over again?
Some

Do you know what causes seizures? (i.e. tiredness, flashing lights, stress)
Tiredness, stress are the main triggers but I will just have them with no trigger.

My seizures usually occur out of the blue (i.e., without warning).
Yes

I usually know when I will have a seizure.
No

I usually know when I have had a seizure.
No

My meds control my seizures.
No but it has reduced them and they aren't as bad.

My meds have no obvious side effects.
I have side effects from some of my meds.

 

[psych_project]

Hey Everyone,
I am so angry, I got either locked out or my post was deleted off of other forums so I just stopped checking so unfortunately none of this awesome information got used in my paper. I'm now kicking myself for not checking. I still do seriously thank everyone for actually taking my survey, getting answers was harder than you would think.

Caitlin

 

[psych_project]

Keeping in mind I'm on oxcarbazepine, I'll still play ball...


Gender?
Male

Age?
29

At what age did you start taking medication?
16

What type of medication(s) are you currently taking?
Oxcarbazepine, Levetiracetam

How much of each medication(s) are you taking?
OX: 300mg/2x daily, Lev: 2000mg/2x daily

What type of seizures do you currently have?
None, but have had multiple types.

How much to do remember from before meds?
Everything, I guess....

How much do you remember since meds?
Everything, (about as much as before, I think)

Are you as sharp as you were without meds (i.e. awareness, reflexes)?
Yes

Do you have to learn things over again?
nothing

Do you know what causes seizures? (i.e. tiredness, flashing lights, stress)
Yes

My seizures usually occur out of the blue (i.e., without warning).
no

I usually know when I will have a seizure.
no

I usually know when I have had a seizure.
Yes

My meds control my seizures.
Yes

My meds have no obvious side effects.
Yes

I'm actually on the exact same meds right now