Having been diagnosed as psychogenic for four years and then to be considered physiological now made me really realize the way you are treated differently in the medical field.
Psychogenic seizures feel real to those who have them and they cannot help the fact that they have them. Yet there are many in the medical field who get angry with you, nurses become indifferent and make you feel like you are wasting their time. There are some doctors who do treat you with respect and then I did have some neurologists basically wipe their hands clean of me and not even point in the direction of additional help.
I was ashamed and kept my seizures secret as much as possible.
It was my dirty little secret.
Now that they are being considered physiological I feel I can tell people now and explain to them when my seizures occur. Doctors actually listen. I feel there is hope for my future whereas before I felt so alone and hopeless.
I don't know where the future lies regarding my seizures...they are decreasing and I do hope they will one day become totally controlled but if not, I'll deal with that too.
I wonder just how many people out there with physiological seizures are being accused of psychological seizures. I know that there is no shame in either. They are both real. I just wish there was a better way of determining the difference so people could get the treatment they really need.
Just putting this out there.
Psychogenic seizures feel real to those who have them and they cannot help the fact that they have them. Yet there are many in the medical field who get angry with you, nurses become indifferent and make you feel like you are wasting their time. There are some doctors who do treat you with respect and then I did have some neurologists basically wipe their hands clean of me and not even point in the direction of additional help.
I was ashamed and kept my seizures secret as much as possible.
It was my dirty little secret.
Now that they are being considered physiological I feel I can tell people now and explain to them when my seizures occur. Doctors actually listen. I feel there is hope for my future whereas before I felt so alone and hopeless.
I don't know where the future lies regarding my seizures...they are decreasing and I do hope they will one day become totally controlled but if not, I'll deal with that too.
I wonder just how many people out there with physiological seizures are being accused of psychological seizures. I know that there is no shame in either. They are both real. I just wish there was a better way of determining the difference so people could get the treatment they really need.
Just putting this out there.