I was on dilantin while pregnant with my youngest daughter (I had not been diagnosed with E until my many years after my two older daughters were born) I was told that the risks to her because of taking this med was, low birth weight, cleft palet (sp?), a hole in her heart, and/or a slower learning than other children her age. I was told that the risk was higher of something happening to her if I didn't take any seizure meds while pregnant.
I also for awhile was very confused about what was wrong, she did only weigh 5lb 6 oz.,
and has ADHD. It did take her longer to understand and able to do things that other children her age could. She is a very artistic, she sings wonderfully even writes her own little songs, and more.
She was held back in second grade due to her slower learning than most other children, however she is now in 3rd grade and doing wonderfully all A's and B's.
She is on meds for ADHD, when she was about 5 she started showing some signs of absence seizures, I took her to a child neurologist and she couldn't say if they were seizures or not. She wanted her to have EEG, and if nothing showed on it then in hospital for VEEG, her father and I decided that we would just wait a bit longer to do this, this may sound like we were neglectful or didn't care if she was having seizures, however, she wasn't expiercing these much and had not been dianosed with her ADHD yet and we knew at that time they would not be able to get her to do what they would expect her to.
She is now 9 will be 10 in July, she has not shown any signs of any type of seizure, we all keep a close watch on her for any signs, I also inform her teachers what to watch for and to write anything of the symptoms down and let us know about them.
Oh, I can go on more this is getting pretty long.