Question for those of you without epilepsy

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valeriedl

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I have epilepsy but I know there are many people on here that don't and are looking for help for someone that does.

I was wondering what it's like living or being with someone who has epilepsy.

You watch us having a seizures. We may be drooling, shaking, loose our bladder, stare off into space, be totally unresponsive to anything you say and so much more. We don't know we're doing any of this but you do. All you know is there was nothing you can do but watch it happen.

A good bit of times when we come out of a seizure we don't even know that we've had it but you did.

Do you get scared? Is there something that you are scared that might happen? Or anything like that?

My memory is horrible after I have a seizure. After my first seizure I had no clue who the guy was that I was dating at the time. I still don't remember anything at all about him or the relationship we were in. I know my husband's biggest fear is that the same thing will happen with him.
 
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valeriedl

A very good question I would be interested in myself.
 
underapileofbooks

Thank you very much for all you do, you truly are a great person to go through all that and still not complain. This is something that reminds me to appreciate my wife more and say Thank you more often. You and others like you are very special people, THANK YOU.

I can only imagine what its like for you.
 
underapileofbooks

Thank you very much for all you do, you truly are a great person to go through all that and still not complain. This is something that reminds me to appreciate my wife more and say Thank you more often. You and others like you are very special people, THANK YOU.

I can only imagine what its like for you.
 
The whole experience is scary, because even though you have seen it before, know what to expect, and know how to help, there is that element of the unknown. What if this seizure is worse than the others, what kind of damage is being caused, will 911 have to be called this time? Plus, there is kind of that unknown of when they will happen. That is a stressor as well. I used to ignore/dismiss most odd noises and now I have to investigate.
 
:bump:
Hope to hear from more FOPWEs* out there...

*Friends Of People With Epilepsy
 
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