reporting tonic clonic seizures

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seetseet

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Good morning all :)
I just wanted to ask if you could share if in your part of the world, do you or do you HAVE to report to your doctor or neurologist that you have had a tonic clonic seizure(s)?
Or do you just tell them when they are becoming irritating?
* if you could share where you are and if its a legal or ethical thing too
Thank you :)
 
Most people will have had letter from hospital and GP so both nuro and doc be aware.you playing dangerous game not telling GP everything...If come out of blue then I urgently encourage same doc..Just take child to er ER.It looks like doc trying help you.Is it uk if it is I maybe able fell you
 
I have quite a few different types of seizures with tonic clonics being one of my seizures; Tthe relationship I have with my neuro is great and I have toldhim when I have forgotten a dose and that has been the reason .Even when I was a taking another pill that looked just like my Tegretol and my sz's increased I told himvwhy it happened because of the mistake I make with the pill.
 
I am not aware of any legal or moral obligation to inform my Dr of my seizure activity, but since my Dr and I work together as a team to treat my epilepsy it is a very good idea to inform my Dr of any seizures I have had.
 
I think it would only pose an issue if you were either driving, and hadn't reported your seizure. Or if you were in a certain job, such as an airline pilot.
 
Do I Tell My Doctor About Seizures?

seetseet,
I don't have to tell my doctor about every seizure that I have, but it is the good thing to do.
If a person doesn't tell their doctor about seizures they may have had and the doctor OKs the person to continue driving it can come back to hurt the person who is doing the driving driving. If that person has an accident and the authorities find out about how the person had lied to their doctor, to keep their driving rights, that person can have their driving rights taken from them for an extended period or even for life.
At the same time a person can't assume that because they have had their seizures nocturnally they can continue to drive. The seizures that have already occurred may have been nocturnally but there is always the possibility of a seizure happening during the day! I refuse to take the chance that a seizure may happen and other people and myself may be injured! Not recognizing this is only putting other people, who are on the road while the person w/E is driving, in danger.

ACsHuman
 
First, thank you for all your replies I truly appreciate them.
I am just a little confused because I only have a yearly appointment and my neuro said that even with meds I still need to expect a tonic clonic seizure here and there or "once every blue moon". So I don't want to be wasting his and my time making an appointment to say that I've had a seizure for an answer of "Well yes.. you have epilepsy"
Do you get what I mean?

Perhaps, is it enough to keep a diary and just show him at my yearly appointment?
 
Hey Seetseet,

I say tell them whatever you need to, in order for them not to put you in the mental hospital. :) JK Yes, best to tell the doc everything, so they can better understand what is going on with you and how they can best help you. But remember, they are working for you, and if you think they are not, then fire them.

I keep a simple diary on a calendar sheet of all the months and days in the year. I just circle the date i have one and note the time and length and something else, like the normal type, or i describe briefly what difference i had from the normal types i'm used to.

:piano: :pop:
 
If I were only seeing my doctor once a year, and my seizure pattern is not changing (not getting worse), I would be comfortable with giving my doctor an annual report of my seizure activity at my once a year appointment.
 
I see my neuro 4 times a year. I keep a seizure diary. I put in it when I had the seizure, type of seizure, how long it lasted, what I did during it and anything else that I think he might want to know about the seizure. I make a copy of it for my neuo to keep.

If I didn't tell him about the number and types of seizures I was having then there's a very good chance he would take me off of some of my meds which wouldn't be good for me at all. I'd probably end up having more worse seizures.
 
seetseet said:
Perhaps, is it enough to keep a diary and just show him at my yearly appointment?
Click to expand...
That's exactly what I do. I mark down all my seizures (as well as other details of the day) and when I see my neurologist I bring a memory stick with that file one it. I use excel & divide the columns into days & the rows into the time, using 15 minute increments.

I also keep a diary in Word for exceptional events that I don't want to forget to tell him months down the road.

It seems like something similar to a diary in MS Word is what you need for now. Just remember to mark things down when they happen. Be as detailed as possible & always mark the date & time of day (if not the exact time).

I know both my neurologists appreciate it. It also makes it easier if you miss an appointment you can email him the updated file telling him/her how you've been doing medically for the last year.
 
When I was living in London I only saw nuro once a year then I gone ten years not seeing one it was foolish thing I did not getting transfer
 
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