Just thought I would check to see if anyone is familiar with RNS. I am about to the max on Keppra & Aptiom, and the seizures keep coming.
I finally got in to see an epileptologist for the first time last week & was told people have been having pretty good results with this. It was approved for use in 2013. I guess it is a unit about the size of your thumb that is implanted in the skull with up to 2 leads that are placed at the points of origin of the seizures. If your seizures originate in more than 2 places I guess you are not a candidate for this.
Sounds pretty damn scary but the more I read about it the more positive it sounds. Was told there was about an 80% success rate with seizure control.
I still have to do the 5 day video EEG to see if I am even a candidate for this. Hook me up to house current and see which way I twitch, rattle the chicken bones & throw em in the air.
Anyway just wondering if anybody out there knows anything and could fill in the blanks for me. Thanks
Ed
I finally got in to see an epileptologist for the first time last week & was told people have been having pretty good results with this. It was approved for use in 2013. I guess it is a unit about the size of your thumb that is implanted in the skull with up to 2 leads that are placed at the points of origin of the seizures. If your seizures originate in more than 2 places I guess you are not a candidate for this.
Sounds pretty damn scary but the more I read about it the more positive it sounds. Was told there was about an 80% success rate with seizure control.
I still have to do the 5 day video EEG to see if I am even a candidate for this. Hook me up to house current and see which way I twitch, rattle the chicken bones & throw em in the air.
Anyway just wondering if anybody out there knows anything and could fill in the blanks for me. Thanks
Ed